Malia Jusczyk
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Malia Dakota Jusczyk (June 26, 2008 — June 14, 2023) was an American child recognized for her advocacy in raising awareness about
childhood cancer Childhood cancer is cancer in a child. About 80% of childhood cancer cases in high-income countries are being able to treat with modern treatments and good medical care. Yet, only 10% of children with cancer live in high-income countries where pro ...
, particularly
neuroblastoma Neuroblastoma (NB) is a type of cancer that forms in certain types of nerve tissue. It most frequently starts from one of the adrenal glands but can also develop in the head, neck, chest, abdomen, or Vertebral column, spine. Symptoms may include ...
. Throughout her battle with
cancer Cancer is a group of diseases involving Cell growth#Disorders, abnormal cell growth with the potential to Invasion (cancer), invade or Metastasis, spread to other parts of the body. These contrast with benign tumors, which do not spread. Po ...
, she participated in various initiatives supporting cancer research and patient care.


Early life and diagnosis

Malia Jusczyk was born on June 26, 2008, to Megan and Glen Jusczyk in
Ludlow Ludlow ( ) is a market town and civil parish in Shropshire (district), Shropshire, England. It is located south of Shrewsbury and north of Hereford, on the A49 road (Great Britain), A49 road which bypasses the town. The town is near the conf ...
, Massachusetts. The family later relocated to Plainville. At the age of two, Jusczyk began experiencing severe abdominal pain, which led to her diagnosis of
neuroblastoma Neuroblastoma (NB) is a type of cancer that forms in certain types of nerve tissue. It most frequently starts from one of the adrenal glands but can also develop in the head, neck, chest, abdomen, or Vertebral column, spine. Symptoms may include ...
, a type of cancer affecting the nervous system. Initial misdiagnoses delayed treatment until further evaluations revealed a large tumor in her kidney that had spread to her spinal cord, bone marrow, femur, and spine. Jusczyk received treatment at Boston Children's Hospital, undergoing six rounds of
chemotherapy Chemotherapy (often abbreviated chemo, sometimes CTX and CTx) is the type of cancer treatment that uses one or more anti-cancer drugs (list of chemotherapeutic agents, chemotherapeutic agents or alkylating agents) in a standard chemotherapy re ...
, a 10-hour tumor resection surgery to remove her
adrenal gland The adrenal glands (also known as suprarenal glands) are endocrine glands that produce a variety of hormones including adrenaline and the steroids aldosterone and cortisol. They are found above the kidneys. Each gland has an outer adrenal corte ...
and kidney, and a
stem cell transplant Hematopoietic stem-cell transplantation (HSCT) is the transplantation of multipotent hematopoietic stem cells, usually derived from bone marrow, peripheral blood, or umbilical cord blood, in order to replicate inside a patient and produce a ...
. The family moved from
Florida Florida ( ; ) is a U.S. state, state in the Southeastern United States, Southeastern region of the United States. It borders the Gulf of Mexico to the west, Alabama to the northwest, Georgia (U.S. state), Georgia to the north, the Atlantic ...
to
Boston Boston is the capital and most populous city in the Commonwealth (U.S. state), Commonwealth of Massachusetts in the United States. The city serves as the cultural and Financial centre, financial center of New England, a region of the Northeas ...
to access specialized medical care. In April 2021, nine years after being declared cancer-free, Jusczyk experienced a
relapse In internal medicine, relapse or recidivism is a recurrence of a past (typically medical) condition. For example, multiple sclerosis and malaria often exhibit peaks of activity and sometimes very long periods of dormancy, followed by relapse or r ...
of neuroblastoma.


Cancer advocacy and activism

Malia Jusczyk was involved in cancer advocacy through the For Kids' Sake Foundation, a nonprofit organization founded by her family in 2011. The foundation raises awareness for neuroblastoma, funds
pediatric cancer Childhood cancer is cancer in a child. About 80% of childhood cancer cases in high-income countries are being able to treat with modern treatments and good medical care. Yet, only 10% of children with cancer live in high-income countries where pro ...
research, and provides financial assistance to families affected by cancer. It also organizes community-based initiatives, such as the annual Super Hero Race to Crush Cancer and the Crush Cancer 5K and 10K runs in Plainville, Massachusetts, to raise funds for clinical trials and support families facing limited treatment options. Malia's story helped raise awareness for pediatric cancer, and the foundation's efforts were supported by the local community.


The Greater Baker contest

During her cancer treatment, Jusczyk developed an interest in baking and became known for her Signature Brown Butter Toffee Chocolate Chip Cookies. In the spring of 2021, she won the online competition The Greatest Baker, and was awarded a $20,000 prize. She used the prize to establish her baking business, Malia's Sweet Treats, and support pediatric cancer research. Jusczyk was also featured in Bake from Scratch magazine. The contest, sponsored by various brands and professional bakers, supports charitable initiatives such as
No Kid Hungry Share Our Strength is a national organization working to end childhood hunger and poverty in the United States. Share Our Strength holds culinary events, solicits individual donations, and uses social media to raise funds, which are then used to ...
.


Soccer involvement

In 2021, Malia Jusczyk was named
Honorary Captain Junior commissioned officer (JCO) is a group of military ranks which is higher than havildar (non-commissioned officer) and lower than lieutenant (commissioned officer). The term is only used by Nepal, Bangladesh, India, and Pakistan. Senior havil ...
by the
New England Revolution The New England Revolution are an American professional association football, soccer club based in the Greater Boston area. The club competes in Major League Soccer (MLS) as a member of the Eastern Conference (MLS), Eastern Conference. It is on ...
soccer team during the Kick Childhood Cancer game. She participated in a ceremonial lap around the field, accompanied by player Matt Turner. On May 13, 2022, the community of
Medway Medway is a Unitary authorities of England, unitary authority area with Borough status in the United Kingdom, borough status in the ceremonial county of Kent in South East England. It was formed in 1998 by merging the boroughs of City of Roche ...
, Massachusetts, organized a special soccer match at Lamson Field in honor of Malia Jusczyk. The event allowed her to engage in one of her favorite activities, soccer.


Death and legacy

Malia Jusczyk died on June 14, 2023, after a prolonged battle with neuroblastoma. Her connection with the New England Revolution soccer team remained significant, with former goalkeeper Matt Turner publicly paying tribute to her. Her legacy continues through the efforts of her family and the For Kids' Sake Foundation, which supports pediatric cancer research and provides assistance to families affected by the disease.


Tributes and remembrance

In memory of Malia Jusczyk, King Philip Regional Middle School established a Day of Kindness to promote kindness among students and staff through various activities. The school also installed a
mural A mural is any piece of Graphic arts, graphic artwork that is painted or applied directly to a wall, ceiling or other permanent substrate. Mural techniques include fresco, mosaic, graffiti and marouflage. Word mural in art The word ''mural'' ...
and a permanent concrete ping pong table to honor her legacy. A candlelight vigil was held at
Telford Town Park Telford Town Park is a park and Local Nature Reserve in Telford in Shropshire. In 2015, it was voted "UK's Best Park" in the inaugural public competition organised by Fields in Trust. History The Anglo-Saxon period saw the first real change ...
in Plainville, organized by local Catholic parishes to commemorate Malia Jusczyk's impact on the community. The event showed the community's ongoingsupport for pediatric cancer awareness and research.


References

{{DEFAULTSORT:Jusczyk, Malia 2023 deaths People from Massachusetts Deaths from cancer in the United States