Futile medical care is the continued provision of medical care or treatment to a patient when there is no reasonable hope of a cure or benefit.
Some proponents of
evidence-based medicine
Evidence-based medicine (EBM) is "the conscientious, explicit and judicious use of current best evidence in making decisions about the care of individual patients". The aim of EBM is to integrate the experience of the clinician, the values of t ...
suggest discontinuing the use of any treatment that has not been shown to provide a measurable benefit. Futile care discontinuation is distinct from
euthanasia
Euthanasia (from el, εὐθανασία 'good death': εὖ, ''eu'' 'well, good' + θάνατος, ''thanatos'' 'death') is the practice of intentionally ending life to eliminate pain and suffering.
Different countries have different eut ...
because euthanasia involves active intervention to end life, while withholding futile medical care does not encourage or hasten the natural onset of death.
Definition
In the broadest sense, futile care is care that does not benefit the patient as a whole, including physical, spiritual, or other benefits. This may be interpreted differently in various legal, ethical, or religious contexts. Clinicians and health care providers may need to rely on a more narrow definition of futile care in order to make decisions about a patient's health care, and this definition often centers around an assessment of the likelihood that a patient could physically recover as a result of treatment, or the likelihood of such treatment to relieve a patient's suffering. Examples of futile care may be a surgeon operating on a terminal cancer patient even when the surgery will not alleviate suffering; or doctors keeping a
brain-dead
Brain death is the permanent, irreversible, and complete loss of brain function which may include cessation of involuntary activity necessary to sustain life. It differs from persistent vegetative state, in which the person is alive and some aut ...
person on
life-support machines for reasons other than to procure their organs for donation. It is a sensitive area that often causes conflicts among medical practitioners and patients or kin.
Many controversies surrounding the concept of futile care center around how futility is assessed differently in specific situations rather than on arguments in favor of providing futile care ''per se''. It is difficult to determine when a particular course of action may fall under the definition of futile medical care, because of the difficulty in defining the point at which there is no further benefit to intervention in each case. For instance, a cancer patient may be willing to undergo yet more
chemotherapy
Chemotherapy (often abbreviated to chemo and sometimes CTX or CTx) is a type of cancer treatment that uses one or more anti-cancer drugs (chemotherapeutic agents or alkylating agents) as part of a standardized chemotherapy regimen. Chemothe ...
with a very expensive medication for the benefit of a few weeks of life, while medical staff, insurance company staff, and close relatives may believe this is a futile course of care.
A 2010 survey of more than 10,000 physicians in the United States found respondents divided on the issue of recommending or giving "life-sustaining therapy when
hey
Hey or Hey! may refer to:
Music
* Hey (band), a Polish rock band
Albums
* ''Hey'' (Andreas Bourani album) or the title song (see below), 2014
* ''Hey!'' (Julio Iglesias album) or the title song, 1980
* ''Hey!'' (Jullie album) or the title s ...
judged that it was futile", with 23.6% saying they would do so, 37% saying they would not, and 39.4% selecting "It depends".
[Doctors Struggle With Tougher-Than-Ever Dilemmas: Other Ethical Issues]
Author: Leslie Kane. 11/11/2010
Arguments against providing futile medical care
Arguments against providing futile care include potential harm to patients, family members, or caregivers with little or no likely benefits, and the diversion of resources to support the futile care of patients when resources could be used to provide care to patients that could respond to care.
Futile care does not offer benefits to the patient as a whole, and at the same time the physical, emotional, spiritual, economic, or ethical hardship and harm caused by futile care to the patient or to family members may be significant.
While futile care does not benefit patients, it may cost providers, the state, and patient families significant money and resources. In some cases, futile care involves the expenditure of resources that could be used by other patients with a good likelihood of achieving a positive outcome. For instance, in the case of
Baby K, attempts to transfer the infant to other centers were unsuccessful because there were no unoccupied
pediatric
Pediatrics ( also spelled ''paediatrics'' or ''pædiatrics'') is the branch of medicine that involves the medical care of infants, children, adolescents, and young adults. In the United Kingdom, paediatrics covers many of their youth until th ...
ICU
ICU commonly refers to:
* Intensive care unit, a special department of a hospital
ICU may also refer to:
Organisations Universities
* Information and Communications University, South Korea
*Istanbul Commerce University, Istanbul, Turkey
* Intern ...
beds in the region. Many critics of that case insist that the medical expenses used to keep the
anencephalic
Anencephaly is the absence of a major portion of the brain, skull, and scalp that occurs during embryonic development. It is a cephalic disorder that results from a neural tube defect that occurs when the rostral (head) end of the neural tube fail ...
child on life support for over two years could have been better spent on awareness and prevention efforts for her condition.
Issues in futile care considerations
The issue of futile care in clinical medicine generally involves two questions. The first concerns the identification of those clinical scenarios where the care would be futile. The second concerns the range of ethical options when care is determined to be futile.
Assessment of futility in a clinical context
Clinical scenarios vary in degrees and manners of futility. While scenarios like providing ICU care to the brain-dead patient or the
anencephalic
Anencephaly is the absence of a major portion of the brain, skull, and scalp that occurs during embryonic development. It is a cephalic disorder that results from a neural tube defect that occurs when the rostral (head) end of the neural tube fail ...
patient when
organ harvesting
Organ procurement (also called organ harvesting) is a surgical procedure that removes organs or tissues for reuse, typically for organ transplantation.
Procedures
If the organ donor is human, most countries require that the donor be legally d ...
is not possible or practical are easily identifiable as futile, many other situations are less clear.
Over the last four decades, the clinical community has improved the quality of
prognostic efforts. As a result, simple but imprecise rules of thumb like "percent mortality = age + percent burn" to judge the futility of burn cases involving elderly patients, have now given way to sophisticated algorithms based on multiple
linear regression
In statistics, linear regression is a linear approach for modelling the relationship between a scalar response and one or more explanatory variables (also known as dependent and independent variables). The case of one explanatory variable is ...
and other advanced
statistic
A statistic (singular) or sample statistic is any quantity computed from values in a sample which is considered for a statistical purpose. Statistical purposes include estimating a population parameter, describing a sample, or evaluating a hy ...
al techniques. These are complex clinical algorithms that have been scientifically validated and have considerable
clinical predictive value, particularly in the case of patients with severe burns. Such algorithms may provide high-quality prognostic information to aid patients and families in making difficult decisions, and have the potential to be used to guide resource allocation.
These prognostic algorithms estimate the probability of the patient surviving. In a study of patients so severely burned that survival was clinically unprecedented, during the initial lucid period (before sepsis and other complications set in) patients were told that survival was extremely unlikely (i.e., that death was essentially inevitable) and were asked to choose between palliative care and aggressive clinical measures. Most chose aggressive clinical measures, which may suggest that the
will to live in patients can be very strong even situations deemed hopeless by the clinician.
Another practical clinical example that often occurs in large hospitals is the decision about whether or not to continue resuscitation when the resuscitation efforts following an in-hospital
cardiac arrest
Cardiac arrest is when the heart suddenly and unexpectedly stops beating. It is a medical emergency that, without immediate medical intervention, will result in sudden cardiac death within minutes. Cardiopulmonary resuscitation (CPR) and possib ...
have been prolonged. A 1999 study in the ''
Journal of the American Medical Association
''The Journal of the American Medical Association'' (''JAMA'') is a peer-reviewed medical journal published 48 times a year by the American Medical Association. It publishes original research, reviews, and editorials covering all aspects of bio ...
'' has validated an algorithm developed for these purposes.
As medical care improves and affects more and more chronic conditions, questions of futility have continued to arise. A relatively recent response to this difficulty in the United States is the introduction of the
hospice concept, in which
palliative care
Palliative care (derived from the Latin root , or 'to cloak') is an interdisciplinary medical caregiving approach aimed at optimizing quality of life and mitigating suffering among people with serious, complex, and often terminal illnesses. Wi ...
is initiated for someone thought to be within about six months of death. Numerous social and practical barriers exist that complicate the issue of initiating hospice status for someone unlikely to recover.
Options for futile care and futile care as a commodity
Another issue in futile care theory concerns the range of ethical options when care is determined to be futile. Some people argue that futile clinical care should be a market
commodity
In economics, a commodity is an economic good, usually a resource, that has full or substantial fungibility: that is, the market treats instances of the good as equivalent or nearly so with no regard to who produced them.
The price of a co ...
that should be able to be purchased just like cruise vacations or luxury automobiles, as long as the purchaser of the clinical services has the necessary funds and as long as other patients are not being denied access to clinical resources as a result. In this model,
Baby K would be able to get ICU care (primarily ventilatory care) until funding vanished. With rising medical care costs and an increase in extremely expensive new anti-cancer medications, the similar issues of equity often arise in treatment of end-stage cancer.
See also
*
Texas Futile Care Law
*
Right to die
The right to die is a concept based on the opinion that human beings are entitled to end their life or undergo voluntary euthanasia. Possession of this right is often understood that a person with a terminal illness, incurable pain, or without ...
References
External links
Medical Futility Blog
{{DEFAULTSORT:Futile Medical Care
Evidence-based medicine
Palliative care