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A Regional Health Information Organization (RHIO, pronounced ''rio''), also called a Health Information Exchange Organization, is a multistakeholder organization created to facilitate a
health information exchange Health Information Exchange (HIE) is the electronic exchange of health care information across organizations within a region, community, or hospital system. Participants in this data exchange are collectively called Health Information Networks (HI ...
(HIE) – the transfer of healthcare information electronically across organizations – among stakeholders of that region's healthcare system. The ultimate objective is to improve the safety, quality, and efficiency of healthcare as well as access to healthcare through the efficient application of health information technology. RHIOs are also intended to support secondary use of clinical data for research as well as institution/provider quality assessment and improvement. RHIO stakeholders include smaller clinics, hospitals, medical societies, major employers and payers. RHIOs are intended to be key to the proposed US
Nationwide Health Information Network The eHealth Exchange, formerly known as the Nationwide Health Information Network (NHIN or NwHIN), is an initiative for the exchange of healthcare information. It was developed under the auspices of the U.S. Office of the National Coordinator for ...
(NHIN).


Background

The US system of healthcare is highly complex and fragmented, with use of multiple information technology systems and vendors incorporating different standards. In contrast with other developed nations, healthcare accounts for a disproportionate percentage of the US
GDP Gross domestic product (GDP) is a monetary measure of the total market value of all the final goods and services produced and rendered in a specific time period by a country or countries. GDP is often used to measure the economic performance o ...
, and there is a concern about the economic viability of Medicare. Despite this significant expenditure, there is evidence of inefficiency, waste and medical errors, with a 2001 estimate by the
Institute of Medicine The National Academy of Medicine (NAM), known as the Institute of Medicine (IoM) until 2015, is an American nonprofit, non-governmental organization. The National Academy of Medicine is a part of the National Academies of Sciences, Engineerin ...
of between 44,000-98,000 annual deaths due to medical errors. While numerous possible causes for this situation exist, much waste (e.g., duplication of laboratory tests) and medical errors (e.g., adverse drug reactions) are traceable to inability of healthcare providers (who are not the patients' primary providers) to access patients' existing medical information in a timely manner when needed: better and more ubiquitous health information technology might be part of the overall solution. In 2004 President
George W. Bush George Walker Bush (born July 6, 1946) is an American politician and businessman who was the 43rd president of the United States from 2001 to 2009. A member of the Bush family and the Republican Party (United States), Republican Party, he i ...
issued for the development and nationwide implementation of an interoperable health information technology infrastructure to improve the quality and efficiency of health care with the goal that most Americans will have an EHR by 2014. In July 2004 the
United States Department of Health and Human Services The United States Department of Health and Human Services (HHS) is a cabinet-level executive branch department of the US federal government created to protect the health of the US people and providing essential human services. Its motto is ...
released their vision of how America's healthcare system could be rebuilt during the next decade. An aspect of the federal effort is the creation of the
Office of the National Coordinator for Health Information Technology An office is a space where the employees of an organization perform administrative work in order to support and realize the various goals of the organization. The word "office" may also denote a position within an organization with specific du ...
. One of the roles of ONC is to facilitate RHIO development. The planning stage of RHIO formation involves # identification of a shared vision/motivation # creating a governance structure # identifying a technology and network infrastructure for data integration # defining standards for
data sharing Data sharing is the practice of making data used for scholarly research available to other investigators. Many funding agencies, institutions, and publication venues have policies regarding data sharing because transparency and openness are consid ...
, protection of data, and business practices to ensure patient protection during data exchange # defining educational and business strategies to ensure sustainability of the effort. Finally, RHIOs must implement the proposed strategies.


Architecture types

The two broad types of architecture, ''centralized'' and ''federated'', correspond to the
data warehouse In computing, a data warehouse (DW or DWH), also known as an enterprise data warehouse (EDW), is a system used for Business intelligence, reporting and data analysis and is a core component of business intelligence. Data warehouses are central Re ...
and
federated database system A federated database system (FDBS) is a type of Meta (prefix), meta-database management system (DBMS), which transparently maps multiple autonomous Database management system, database systems into a single federated database. The constituent data ...
models of data integration. In the centralized configuration (e.g., The Santa Cruz Community and the Michigan UP Network), all providers send their data to the RHIO's central repository on a periodic basis (daily). In the federated model, the RHIO acts as a record locator service, the data stays at its original location, and the RHIO only has a "pointer" to that information. The pros and cons of each architecture follow from the approaches. ; Centralized : For the Centralized design, once data is centralized and restructured into a uniform data model, it is easier to query and analyze. However, because movement and restructuring is generally a complex batch process involving the well-known steps of "
extract, transform, load Extract, transform, load (ETL) is a three-phase computing process where data is ''extracted'' from an input source, ''transformed'' (including cleaning), and ''loaded'' into an output data container. The data can be collected from one or mor ...
", the centralized data may be somewhat out of date if the (logistically challenging) target of daily updates is not achieved. Also, there may be concerns among the individual RHIO participants who originate the raw data that they are giving up "control" and "ownership" once the data is copied to a central site. Also, creation of the central repository requires close collaboration to determine exactly what data will be centralized and how it will be structured. ; Federated : In federated systems the RHIO software only stores information about the locations where a patient's data is available. These are often more politically feasible than centralized systems. However, designing a protocol by which the RHIO can query (heterogeneously structured) individual provider data stores is technically challenging. The software at the individual sites must ensure authenticate electronic requests to ensure that they are legitimate and authorized, and no standards that can be used for this purpose currently exist. A federated setup requires greater network bandwidth than the centralized approach, because a request by a user of the central RHIO software can be farmed out to multiple provider systems. Centralized and federated approaches are not mutually exclusive, and hybrid setups can be employed. In one proposed hybrid model, the health record trust or health record data bank, all data for each patient would stay in a single repository as in the centralized model, but patients could choose which data bank to use for their records.


Current status

, 193 initiatives (including RHIOs) in the United States were working on health information exchange, and 57 of those were actively exchanging data used by healthcare stakeholders. RHIO initiatives exist at two levels, larger (statewide) and smaller (local and rural). Compared to local RHIOs, state-level initiatives, because of the larger number of stakeholders and patient base, and consequent financial strength, have a greater likelihood of being able to utilize national-level expertise both in health IT and policy-making. Most operational RHIO efforts tend to be larger efforts, though the risk of political battles and consequent failure is also amplified if several large stakeholders choose not to cooperate with each other. Compared to state-level RHIOs, stakeholders tend to be more heterogeneous with respect to line of business, use of technology and size. Rural RHIOs have a subscriber base of less than 100,000. The presence of numerous, smaller organizations with relatively limited IT budgets translates to numerous challenges due to the dis-economies of small scale. There is limited access to skilled technology professions, and health IT vendors pay less attention to small customers. Many stakeholders continue to deploy legacy software from long-defunct vendors and some may not deploy IT at all. In addition, stakeholders may be less IT-savvy, and even availability of high-speed Internet connectivity may not be assured. A significant sustainability challenge for smaller RHIOs involves funding. Some support models (e.g., used by Northwest, Louisville KY) are based on shared, subscription-based use of commercial health information software, and the shared use of scarce resources such as information technology professionals, who are unaffordable for smaller organizations acting individually. Irrespective of size, certain challenges remain, such as interoperability standards, as well as consistent standards with respect to privacy, security and appropriate use of the data. Currently, privacy/security issues vary across states, and federal efforts to ensure uniformity are desirable.


Examples


INPC and IHIE

The Indiana Network for Patient Care (INPC) — originally the Indianapolis Network for Patient Care and Research (INPRC) — operational since 1994, connects all five major hospital systems in greater Indianapolis. All INPC participants now deliver registration records, all laboratory tests, text reports, medication history and all UB92 records (diagnosis, length of stay, and procedure codes) for hospital admissions and emergency room visits to separate electronic medical record vaults in a central INPC server using a federated data store model. The message exchange standard that is used is HL7. The computer system standardizes all clinical data as it arrives at the INPC vault, laboratory, radiology, and other study test results are mapped to a set of common test codes
LOINC Logical Observation Identifiers Names and Codes (LOINC) is a database and universal standard for identifying medical laboratory observations. First developed in 1994, it was created and is maintained by the Regenstrief Institute, a US nonprofit m ...
with standard units of measure, and patients with multiple medical record numbers are linked. Implementation has been simplified because each participating institution uses the same data model and term dictionary which contain the codes, names (and other attributes) for tests, drugs, coded answers, etc. The data for any participating patient seen in any of the region's 11 emergency rooms can be presented as one virtual medical record. Stakeholders/ participants in this RHIO include: major and regional hospital systems, regional and national reference laboratories, state, federal, and private payors, pharmacy benefit management claims repository services, major physician practice organizations, individual providers, state government (Dept. of Health), major academic research institutions, and others. The statewide Indiana Health Information Exchange (IHIE), which uses the expertise of the same medical informatics/IT team as the INPC, combines clinical data in combination with administrative (claims) data to support electronic delivery of test reports to physician offices using faxes, printers, and e-mail, as well as Clinical Quality Services, which provide a "report card" (and incentives) on established quality measures to physicians, practice groups, employers, and payers. The IHIE is a rare example of a self-sustaining
health information exchange Health Information Exchange (HIE) is the electronic exchange of health care information across organizations within a region, community, or hospital system. Participants in this data exchange are collectively called Health Information Networks (HI ...
(not reliant on government grants). Stakeholder satisfaction with this RHIO is apparently high.


CalRHIO

CalRHIO is an example of an RHIO failure due to political/turf battles; it shutdown January 8, 2010. Following heavy competition with California e-Health Collaborative (CAeHC) for designation as California's statewide HIE entity, both organizations were turned down by the state government in December 2009; large stakeholders such as Medicity Inc. and Kaiser Permanente subsequently followed suit and withdrew financial support. Reasons for CalRHIO's failure have been attributed to a limited business model dependent on state-entity designation.


Healthcurrent

Healthcurrent is the RHIO for the state of
Arizona Arizona is a U.S. state, state in the Southwestern United States, Southwestern region of the United States, sharing the Four Corners region of the western United States with Colorado, New Mexico, and Utah. It also borders Nevada to the nort ...
, formerly known as AZHeC. Healthcurrent hosts a physical health and behavioral health/crisis portal for health information exchange throughout Arizona. Healthcurrent links care providers to its standards-based HIE platform and holds a repository of data that is available to be shared with properly accredited care providers in the community. Arizona is an opt-out state for healthcare data flowing to the state HIE.


Other examples

In some states (e.g., Kansas), an alternative to a stakeholder-consortium-based state-level RHIO is being considered, namely direct involvement of the state governments in creating the RHIO infrastructure. This approach builds on the strengths of state governments as major employers and purchasers of healthcare services (e.g.,
University of Alabama at Birmingham The University of Alabama at Birmingham (UAB) is a public research university in Birmingham, Alabama, United States. Founded in 1969 and part of the University of Alabama System, UAB has grown to be the state's largest employer, with more than ...
, is Alabama's largest employer). Similarly, TennCare in Tennessee has roots in addressing the state's un- and under-insured population and is consequently more state driven. Utah's efforts are based on the state's prior efforts to process healthcare claims. Recent federal efforts (e.g., at the
Veterans Administration The United States Department of Veterans Affairs (VA) is a Cabinet-level executive branch department of the federal government charged with providing lifelong healthcare services to eligible military veterans at the 170 VA medical centers an ...
) are aimed at creating a federal employee based electronic health record system, which might be considered a national RHIO.


See also

* Chesapeake Regional Information System for our Patients (CRISP) — RHIO serving Maryland the District of Columbia *
HealthBridge HealthBridge is a service line of The Health Collaborative, a not-for-profit corporation located in Cincinnati, Ohio, United States. HealthBridge supports health information technology (HIT) adoption, health information exchange (HIE), and inno ...
— RHIO for the Greater Cincinnati area (Ohio, Kentucky, & Indiana) * Informatics Corporation of America — a RHIO vendor *
PeaceHealth PeaceHealth is a not-for-profit health care system that owns and operates ten hospitals and numerous clinics in the U.S. states of Alaska, Oregon, and Washington. The organization is headquartered in Vancouver, Washington, and was founded by the ...
— Medical Group in Alaska, Oregon, & Washington


References


External links


Office of the National Coordinator for Health Information TechnologyAHRQ National Resource Center for Health Information Technology


RHIO sites


New York eHealth Collaborative
(NYeC / SHIN-NY) *
Hixny
in the
Hudson Valley The Hudson Valley or Hudson River Valley comprises the valley of the Hudson River and its adjacent communities in the U.S. state of New York (state), New York. The region stretches from the Capital District (New York), Capital District includi ...
, Capital Region, and parts of the
Southern Tier The Southern Tier is a geographic subregion of the broader Upstate New York, Upstate region of New York (state), New York State, geographically situated along or very near the state border with Pennsylvania. Definitions of the region vary wide ...
and North Country *
Healthix
in Greater New York *
BronxRHIO
in
The Bronx The Bronx ( ) is the northernmost of the five Boroughs of New York City, boroughs of New York City, coextensive with Bronx County, in the U.S. state of New York (state), New York. It shares a land border with Westchester County, New York, West ...
*
Rochester RHIO
in Rochester, the
Finger Lakes The Finger Lakes are a group of eleven long, narrow, roughly north–south lakes located directly south of Lake Ontario in an area called the ''Finger Lakes region'' in New York (state), New York, in the United States. This region straddles th ...
, and
Southern Tier The Southern Tier is a geographic subregion of the broader Upstate New York, Upstate region of New York (state), New York State, geographically situated along or very near the state border with Pennsylvania. Definitions of the region vary wide ...
*
HEALTHeLINK
in Buffalo and
Western New York Western New York (WNY) is the westernmost region of the U.S. state of New York (state), New York. The eastern boundary of the region is not consistently defined by state agencies or those who call themselves "Western New Yorkers". Almost all so ...

Indiana Health Information Exchange

Medical Information Network – North Sound
(MIN-NS) — Mount Vernon, Washington
CORHIO
— Colorado
Keystone Health Information Exchange
(KeyHIE) — Pennsylvania
Chesapeake Regional Information System for our Patients
(CRISP) — Maryland the District of Columbia
Midsouth e-Health Alliance
— Memphis-area, Tennessee {{Health informatics Medical and health organizations based in the United States Health informatics organizations Office of the National Coordinator for Health Information Technology