Patrick Quinn (ALS Activist)
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Patrick Quinn (February 10, 1983November 22, 2020) was an American
amyotrophic lateral sclerosis Amyotrophic lateral sclerosis (ALS), also known as motor neuron disease (MND) or—in the United States—Lou Gehrig's disease (LGD), is a rare, Terminal illness, terminal neurodegenerative disease, neurodegenerative disorder that results i ...
(ALS) activist who helped generate awareness and raise more than US$220 million for medical research through the
Ice Bucket Challenge The Ice Bucket Challenge, sometimes called the ALS Ice Bucket Challenge, is an activity involving the pouring of a bucket of ice water over a person's head, either by another person or self-administered, to promote awareness of the disease amyo ...
, a viral
social media Social media are interactive technologies that facilitate the Content creation, creation, information exchange, sharing and news aggregator, aggregation of Content (media), content (such as ideas, interests, and other forms of expression) amongs ...
campaign.


Early life

Quinn was born on February 10, 1983, in
Yonkers, New York Yonkers () is the List of municipalities in New York, third-most populous city in the U.S. state of New York (state), New York and the most-populous City (New York), city in Westchester County, New York, Westchester County. A centrally locate ...
, to Rosemary and Patrick Quinn Sr. He went to Iona College in
New Rochelle, New York New Rochelle ( ; in ) is a Political subdivisions of New York State#City, city in Westchester County, New York, Westchester County, New York (state), New York, United States. It is a suburb of New York City, located approximately from Midtow ...
, where he was part of the rugby team. He was diagnosed with the
amyotrophic lateral sclerosis Amyotrophic lateral sclerosis (ALS), also known as motor neuron disease (MND) or—in the United States—Lou Gehrig's disease (LGD), is a rare, Terminal illness, terminal neurodegenerative disease, neurodegenerative disorder that results i ...
disease (also known as
motor neuron disease Amyotrophic lateral sclerosis (ALS), also known as motor neuron disease (MND) or—in the United States—Lou Gehrig's disease (LGD), is a rare, terminal neurodegenerative disorder that results in the progressive loss of both upper and low ...
and in the U.S. as
Lou Gehrig Henry Louis Gehrig ( ; June 19, 1903June 2, 1941), also known as Heinrich Ludwig Gehrig, was an American professional baseball first baseman who played 17 seasons in Major League Baseball (MLB) for the New York Yankees (1923–1939). Gehrig was ...
's disease) on March 8, 2013, a month after his 30th birthday.


ALS advocacy

Along with fellow ALS activist and captain of the Boston College baseball team, Peter Frates, Quinn helped draw attention to ALS by co-creating the
Ice Bucket Challenge The Ice Bucket Challenge, sometimes called the ALS Ice Bucket Challenge, is an activity involving the pouring of a bucket of ice water over a person's head, either by another person or self-administered, to promote awareness of the disease amyo ...
, a video enabled fundraiser, that went viral and helped generate more than $220m for medical research for the disease. The challenge went viral in 2014, when celebrities and common people all across the world filmed short-form videos of themselves dumping buckets of ice water on their heads, committing to donations for ALS research, and asking others to do the same. The campaign had over 20 million videos being created and shared with celebrities including former President
George W. Bush George Walker Bush (born July 6, 1946) is an American politician and businessman who was the 43rd president of the United States from 2001 to 2009. A member of the Bush family and the Republican Party (United States), Republican Party, he i ...
,
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,
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,
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,
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,
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, and
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. The campaign started in Florida with golfer Chris Kennedy, who took the challenge to cheer a family member with ALS; the news soon reached Quinn and Frates, who took up promoting the challenge on social media. Both Quinn and Frates undertook the challenge in support of the Cambridge, MA, based
ALS Therapy Development Institute The ALS Therapy Development Institute (ALS TDI) is a non-profit biotechnology research organization focused on finding treatments for amyotrophic lateral sclerosis (ALS). With a staff including more than 30 scientists, it operates a research and d ...
. Writing in their book, '' Ice Bucket Challenge: Pete Frates and the Fight Against ALS'', authors Casey Sherman and Dave Wedge note that Frates went on to become Quinn's mentor, drawn by his "determination, grit, drive, and passion" and also the kinship from the fact that both were much younger than the average ALS patient. Quinn continued his advocacy after the challenge through his foundation "Quinn for the Win," to generate awareness of the disease and raise funds for research. He continued to speak in forums raising awareness and conducted the challenge annually every August, in Yonkers, NY, called "Every August Until the Cure". He was honored by the
ALS Association The ALS Association is an American nonprofit organization that funds global amyotrophic lateral sclerosis (ALS) research, provides care services and programs to people affected by ALS through its nationwide network of clinical care centers, and w ...
with the "ALS Heroes" award in 2015, for his "significant positive impact" on the fight against ALS. He was also nominated along with Frates for TIME Magazine's Person of the Year for his role in raising awareness for the disease and promoting research. In a statement, the
ALS Association The ALS Association is an American nonprofit organization that funds global amyotrophic lateral sclerosis (ALS) research, provides care services and programs to people affected by ALS through its nationwide network of clinical care centers, and w ...
, acknowledging Quinn's efforts, went on to say, "The Ice Bucket challenge dramatically accelerated the fight against ALS, leading to new research discoveries, expansion of care for people with ALS, and greater investment by the government in ALS research.” Speaking of his specific role, the ALS Association said, "Pat changed the trajectory of the fight against ALS forever. He inspired millions to get involved and care about people who are living with ALS." Frates had died of the disease a year earlier at the age of 34.


Personal life

Quinn married Jennifer Flynn, his girlfriend at the time of his diagnosis with ALS, in 2014. The union later ended in a divorce. Quinn died on November 22, 2020, at the St. John's Riverside Hospital in
Yonkers, New York Yonkers () is the List of municipalities in New York, third-most populous city in the U.S. state of New York (state), New York and the most-populous City (New York), city in Westchester County, New York, Westchester County. A centrally locate ...
, after suffering from ALS for seven years. He was 37 years old.


References


External links

* Ice Bucket Challenge Media on Wikimedia Commons {{DEFAULTSORT:Quinn, Patrick 1983 births 2020 deaths Iona University alumni People from Yonkers, New York Deaths from motor neuron disease in New York (state) 21st-century American people