The National Multiple Sclerosis Society (NMSS) is an American
nonprofit organization
A nonprofit organization (NPO), also known as a nonbusiness entity, nonprofit institution, not-for-profit organization, or simply a nonprofit, is a non-governmental (private) legal entity organized and operated for a collective, public, or so ...
founded in 1946.
It is an organization dedicated to supporting individuals affected by multiple sclerosis (MS) and funding research to find a cure for the disease. They provide resources, support services, advocacy efforts, and educational programs to improve the lives of people with MS and their families.
History
The National Multiple Sclerosis Society (NMSS) was founded in
New York City
New York, often called New York City (NYC), is the most populous city in the United States, located at the southern tip of New York State on one of the world's largest natural harbors. The city comprises five boroughs, each coextensive w ...
as the Association for Advancement of Research on Multiple Sclerosis on March 11, 1946 by
Sylvia Lawry,
a lawyer seeking a cure for her brother, Bernard, who suffered from multiple sclerosis. Recognizing the absence of any existing foundation or organization aiding individuals with (MS), Ms. Lawry established NMSS.
With chapters spanning the
United States
The United States of America (USA), also known as the United States (U.S.) or America, is a country primarily located in North America. It is a federal republic of 50 U.S. state, states and a federal capital district, Washington, D.C. The 48 ...
, the organization funds research, advocates for social and political change, offers educational resources, and sponsors services that help people with
multiple sclerosis
Multiple sclerosis (MS) is an autoimmune disease resulting in damage to myelinthe insulating covers of nerve cellsin the brain and spinal cord. As a demyelinating disease, MS disrupts the nervous system's ability to Action potential, transmit ...
and their families. In 2016,
Forbes
''Forbes'' () is an American business magazine founded by B. C. Forbes in 1917. It has been owned by the Hong Kong–based investment group Integrated Whale Media Investments since 2014. Its chairman and editor-in-chief is Steve Forbes. The co ...
ranked the organization 63rd among the 100 largest U.S. charities. In 2017,
Charity Navigator
Charity Navigator is a charity assessment organization that evaluates more than 230,000 charitable organizations based in the United States, operating as a 501(c)(3) organization. It provides insights into a nonprofit's financial stability, adh ...
awarded the organization three out of four stars for its performance.
Research
The NMSS supports and funds research activities in early research, translational research that develops laboratory results into treatments, and
clinical trial
Clinical trials are prospective biomedical or behavioral research studies on human subject research, human participants designed to answer specific questions about biomedical or behavioral interventions, including new treatments (such as novel v ...
s to find out whether they are effective in treating MS. In 2012, the Society invested $44 million in more than 350 new and ongoing projects.
. As of 2016, NMSS has raised $974 million for research
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Throughout two two-day meetings in 2014–2015, the NMSS developed the Wellness Research Working Group and wellness research priorities. The Research Wellness Group provides information regarding self-directed approaches for disease management to people diagnosed with multiple sclerosis.
Research rewards consist of several types of contributions to researchers in early to late stages of their careers. The following is a list of awards distributed by NMSS to researchers in 2017.
Research funding and grant programs
Career Transition Fellowship
The Career Transition Fellowship program sponsors postdoctoral training and research funding for scientists who demonstrate a dedication to MS research. Awards are in amounts up to $550,000 for a total of five years of training and research. The training period covers two years and research funding covers three additional years for research in a new faculty position.
Collaborative MS Research Center Awards
The NMSS offers funding to research centers with the intent to promote interaction among researchers. The Collaborative MS Research Center Awards program is intended to create collaboration between MS researchers, including independent investigators, and clinical research organizations. In addition, the program reaches out to professionals working in other fields of research to recruit them into MS research projects.
MS Research Center Awards are obtained through an application process through the NMSS MS Grants web page.
Fast Forward commercial/drug development
Fast Forward is a commercial research funding entity under the NMSS which provides funding for drug development and MS research being conducted through commercial entities such as EMD Pharmaceuticals, the University of Cambridge, the University of Edinburgh, and others. Researchers interested in the program are able to apply for funding through the Commercial Funding Opportunities web page.
Daniel Haughton Senior Faculty Award
This award was named after a member of the Board of Directors of the NMSS. Its purpose was to provide funding for training of MS researchers who needed additional education regarding the disease. As of 2017, this award was on hold and not accepting applications.
Harry Weaver Neuroscience Scholarships
Harry Weaver was a researcher in the field of neuroscience who had a dedication to MS research. He was the Director of Research at NMSS from 1966 to 1977. The scholarship in his name is offered to provide salary and research funding for a period of five years to researchers who are beginning their careers in MS research. The program is most often supported through universities.
Health Care Delivery & Policy Contracts
The Health Care Delivery and Policy Research (HCDPR) program funds investigators who are conducting research projects which address NMSS organization's priorities. These priorities are listed by the NMSS as funding, quality, outcomes, and costs for care related to MS.
International Progressive MS Alliance
The International Progressive MS Alliance was founded in 2012 as the International Progressive MS Collaborative. The MS Alliance membership is composed of MS organizations from around the world. The Alliance provides two different funding awards, including the Challenge Award and Collaborative Network Award grants. Both grants provide funding over multiple years to researchers and institutions in the international community.
Mentor-based Postdoctoral Rehabilitation
This program supports a combination of mentors and MS postdoctoral training institutions to recruit and train MS rehabilitation fellows. Mentors are required to be experienced MS researchers who have an established and active participation in their field. Interested parties must submit an application for the program through the NMSS website.
Participants in the program include the Duke University School of Medicine, the Weizmann Institute of Science
The Weizmann Institute of Science ( ''Machon Weizmann LeMada'') is a Public university, public research university in Rehovot, Israel, established in 1934, fourteen years before the State of Israel was founded. Unlike other List of Israeli uni ...
, University of Colorado Anschutz Medical Campus, University of Utah
The University of Utah (the U, U of U, or simply Utah) is a public university, public research university in Salt Lake City, Utah, United States. It was established in 1850 as the University of Deseret (Book of Mormon), Deseret by the General A ...
, and additional related institutions.
Clinician Scientist Development Award
The American Academy of Neurology
The American Academy of Neurology (AAN) is a professional society representing over 40,000 neurologists and neuroscientists. As a medical specialty society it was established in 1948 by A.B. Baker of the University of Minnesota to advance the a ...
and NMSS have partnered to develop this grant program. The program focuses on providing grant funding to MS researchers. In 2016, the American Academy of Neuroscience Clinician Scientist Development Program awarded $3 million to research and training programs with a focus on neuroscience.
Pilot Research Grants
High-risk pilot research programs focus on cutting-edge ideas and methods that have not been tested and may contribute to MS medical research. The Pilot Research Grants provide one year of research funding to pilot programs in order to develop results which can be used to apply for long term funding programs.
References
External links
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Non-profit organizations based in New York City
Organizations established in 1946
1946 establishments in New York City
Multiple sclerosis organizations
Disability organizations based in the United States