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Kyle Bryant (October 5, 1981) is an athlete, speaker and the spokesperson for the Friedreich's Ataxia Research Alliance (FARA). Bryant is the founder and event director of rideATAXIA – a nationwide bike ride fundraiser benefiting FARA.


Early life

Bryant was born in Auburn, California to Mike and Diane Bryant. He has a brother Collin (born 1979) who is a firefighter.


Diagnosis

Bryant was diagnosed at age 17 with
Friedreich's ataxia Friedreich's ataxia (FRDA or FA) is an autosomal-recessive genetic disease that causes difficulty walking, a loss of sensation in the arms and legs, and impaired speech that worsens over time. Symptoms generally start between 5 and 20 year ...
, a rare, life-shortening, degenerative neuromuscular disorder. About one in 50,000 people in the United States have FA. Friedreich's ataxia is a genetic disorder with symptoms including muscle weakness, loss of coordination, vision impairment, slurred speech, hearing loss, scoliosis (curvature of the spine), and a life-shortening heart condition. The disorder is progressive, and most young people diagnosed need the aid of a cane, walker, or wheelchair by their teens or early 20s.


rideATAXIA

Bryant founded rideATAXIA in 2007 with a 2,500-mile, 59-day ride from San Diego, California to Memphis TN. The goal of the ride was to raise awareness and research funds for Friedreich's Ataxia (FA). The first rideATAXIA took place between January 22 and March 21, 2007, when Bryant and his father, Mike Bryant, rode their bikes from
San Diego San Diego ( , ; ) is a city on the Pacific Ocean coast of Southern California located immediately adjacent to the Mexico–United States border. With a 2020 population of 1,386,932, it is the List of United States cities by population, eigh ...
,
California California is a U.S. state, state in the Western United States, located along the West Coast of the United States, Pacific Coast. With nearly 39.2million residents across a total area of approximately , it is the List of states and territori ...
to the National Ataxia Foundation (NAF) annual membership meeting in
Memphis, Tennessee Memphis is a city in the U.S. state of Tennessee. It is the seat of Shelby County in the southwest part of the state; it is situated along the Mississippi River. With a population of 633,104 at the 2020 U.S. census, Memphis is the second-mos ...
. The mission of rideATAXIA is to educate the public about FA by drawing attention through acts of physical endurance, enable the advancement of FA research through collaborative financial support, and empower others with ataxia by inspiring, motivating, and providing opportunities to develop physical and mental strength. During the first ride, the team raised more than $40,000 and helped unite the National Ataxia Foundation (NAF) and Freidreich's Ataxia Research Alliance (FARA). Both NAF and FARA contributed matching funds, and helped to create the Kyle Bryant Translational Research Award in 2007. This is an annual award that provides opportunities for applicants to request a budget of up to $250,000 per year for one or two years. Nationally, rideATAXIA has raised over $6 million for FA research. Currently rideATAXIA holds six annual events in five states, and has raised over a million each year in 2016 & 2017. In 2010, Bryant participated in the Race Across America (RAAM) as part of 4-man Team FARA. The team completed the 3000 mile non-stop race from San Diego, California to
Annapolis Annapolis ( ) is the capital city of the U.S. state of Maryland and the county seat of, and only incorporated city in, Anne Arundel County. Situated on the Chesapeake Bay at the mouth of the Severn River, south of Baltimore and about east o ...
, Maryland in 8 days, 8 hours, and 14 minutes. The race was the subject of the documentary film
The Ataxian ''The Ataxian'' is a documentary film of Kyle Bryant, a sufferer of Friedreich's ataxia. The film premiered at the Dances With Films Festival in 2015. Synopsis The movie tells how Bryant lost the ability to play his favorite sports and walk. ...
.


FARA

Bryant became the spokesperson for FARA, a non-profit, charitable organization dedicated to accelerating research leading to treatments and a cure for Friedreich's ataxia. With Bryant as the program director and
Outback Steakhouse Outback Steakhouse is an American chain of Australian-themed casual dining restaurants, serving American cuisine, based in Tampa, Florida. The chain has over 1,000 locations in 23 countries throughout North and South America, Asia, and Australia ...
as the presenting sponsor, FARA began to build a network of single day family friendly rides all across the nation. Currently, there are five different rideAtaxia events across the country: Northern California, Dallas, Orlando, Philadelphia, and Chicago.


Media activities

In December 2016 Bryant launched the biweekly Two Disabled Dudes Podcast with his RAAM teammate, and fellow FA patient Sean Baumstark. Kyle wrote an autobiography in 2019 ''Shifting into High Gear''


Awards

In 2013, Bryant was featured as one of
Barefoot Wine Barefoot is the state of not wearing any footwear. There are health benefits and some risks associated with going barefoot. Shoes, while they offer protection, can limit the flexibility, strength, and mobility of the foot and can lead to ...
's "Soles of the Year."


References


External links


Ride Ataxia website

Kyle Bryant website

Kyle Bryant TEDx Talk

Two Disabled Dudes Podcast
{{DEFAULTSORT:Bryant, Kyle 1981 births Living people University of California, Davis alumni People from Auburn, California