Katie Beckett (playwright)
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A Katie Beckett waiver or TEFRA waiver is a
Medicaid waiver Medicaid Waiver programs help provide services to people who would otherwise be in an institution, nursing home, or hospital to receive long-term care Long-term care (LTC) is a variety of services which help meet both the medical and non-medic ...
concerning the income eligibility for home-based Medicaid services for children under the age of nineteen. Prior to the Katie Beckett waiver, if a child with significant medical needs received treatment at home, the child's income would be deemed to include the parents' entire financial resources for the purposes of determining Medicaid eligibility. Only after a hospitalization lasting more than thirty days would the parents' income no longer be associated with the child, allowing the child to then qualify for Medicaid coverage. The effect was that many families, unable to afford home treatment, kept their children in costly hospital settings in order to meet the Medicaid 30-day requirement. Katie Beckett waivers allow Medicaid to cover medical services for children in the home, regardless of the parents' income, in cases where home-based treatment will cost less than or the same as treatment in a hospital. The waiver is named for Katie Beckett, a three-year-old who was hospitalized from infancy so she could receive ventilator assistance after a
viral encephalitis Viral encephalitis is inflammation of the brain parenchyma, called encephalitis, by a virus. The different forms of viral encephalitis are called viral encephalitides. It is the most common type of encephalitis and often occurs with viral meningiti ...
infection left her partially paralyzed in a way that affected her ability to breathe. When her situation came to the attention of the newly elected
Reagan administration Ronald Reagan's tenure as the 40th president of the United States began with his first inauguration on January 20, 1981, and ended on January 20, 1989. Reagan, a Republican from California, took office following his landslide victory over ...
, then preparing its first budget, the administration seized the story as a way to deregulate and reduce the costs of Medicaid. The waiver is also called a TEFRA waiver because it was passed as a provision of the
Tax Equity and Fiscal Responsibility Act of 1982 The Tax Equity and Fiscal Responsibility Act of 1982 (), also known as TEFRA, is a United States federal law that rescinded some of the effects of the Kemp-Roth Act passed the year before. Between summer 1981 and summer 1982, tax revenue fell b ...
. Disabled people can transition to Medicaid Home and Home and Community-Based Services Waivers after age nineteen.


Background and enactment

Mary Katherine Beckett was born on 9 March 1978 in St. Luke's Hospital, Cedar Rapids, Iowa, to parents Julie and Mark Beckett. At four months, she contracted
viral encephalitis Viral encephalitis is inflammation of the brain parenchyma, called encephalitis, by a virus. The different forms of viral encephalitis are called viral encephalitides. It is the most common type of encephalitis and often occurs with viral meningiti ...
. The brain inflammation put her in a coma and left her partially paralyzed in a way that affected her ability to breathe and with grand mal seizures. Her difficulty breathing required her to be on a ventilator most hours of the day. Beckett lived until age 34, triple the age forecasted by her physicians. She died on 18 May 2012 in the same hospital in which she was born.


See also

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Least restrictive environment In the United States, the Individuals with Disabilities Education Act (IDEA) is a special education law that mandates regulation for students with disabilities to protect their rights as students and the rights of their parents. The IDEA requires ...
*
Medicaid waiver Medicaid Waiver programs help provide services to people who would otherwise be in an institution, nursing home, or hospital to receive long-term care Long-term care (LTC) is a variety of services which help meet both the medical and non-medic ...
* Medicaid Home and Home and Community-Based Services Waivers *
Olmstead v. L.C. ''Olmstead v. L.C.'', 527 U.S. 581 (1999), is a United States Supreme Court case regarding discrimination against people with mental disabilities. The Supreme Court held that under the Americans with Disabilities Act, individuals with mental dis ...


References


Bibliography

* * * {{Presidency of Ronald Reagan Public policy of the Reagan administration Disability law in the United States Federal assistance in the United States Medicare and Medicaid (United States) 1982 in American law