John Davidson
MBE (born 1 June 1971) is a Scottish campaigner for
Tourette syndrome
Tourette syndrome (TS), or simply Tourette's, is a common neurodevelopmental disorder that begins in childhood or adolescence. It is characterized by multiple movement (motor) tics and at least one vocal (phonic) tic. Common tics are blinkin ...
, who lives in
Galashiels
Galashiels (; , ) is a town in the Scottish Borders with a population of around 12,600. Its name is often colloquially shortened to "Gala". The town is a major commercial centre for the Borders region with extensive history in the textile in ...
.
At age 16, Davidson was the subject of the BBC TV documentary ''
John's Not Mad'' (1989) about the manifestations of Tourette syndrome with which he lived, and a number of follow-up BBC documentaries throughout his life.
He is a "nationally known ambassador for the condition",
who gives talks and workshops for school pupils, teachers and police, and has organised an annual two-day residential Tourette camp for young people. In 2019 he was awarded an
MBE in recognition of "his efforts to increase understanding of the condition and helping families deal with it across the country."
Biography
Davidson's condition encompasses a range of symptoms:
Tourette syndrome
Tourette syndrome (TS), or simply Tourette's, is a common neurodevelopmental disorder that begins in childhood or adolescence. It is characterized by multiple movement (motor) tics and at least one vocal (phonic) tic. Common tics are blinkin ...
tics including
coprolalia
Coprolalia ( ) is involuntary swearing or the involuntary utterance of obscene words or socially inappropriate and derogatory remarks. The word comes from the Ancient Greek language, Greek (), meaning "dung, feces", and () "speech", from () "to ...
,
echolalia
Echolalia is the unsolicited repetition of vocalizations made by another person; when repeated by the same person, it is called palilalia. In its profound form it is automatic and effortless. It is one of the echophenomena, closely related to ...
, sudden and violent body movements; as well as a severe form of
obsessive–compulsive disorder
Obsessive–compulsive disorder (OCD) is a mental disorder in which an individual has intrusive thoughts (an ''obsession'') and feels the need to perform certain routines (''Compulsive behavior, compulsions'') repeatedly to relieve the dis ...
(OCD).
At age 16 a
BBC TV
BBC Television is a service of the BBC. The corporation has operated a public broadcast television service in the United Kingdom, under the terms of a royal charter, since 1 January 1927. It produced television programmes from its own studios ...
documentary was made about him, ''
John's Not Mad'' (1989), which "became a major talking point" nationally
—in 2004 ''
The Times
''The Times'' is a British Newspaper#Daily, daily Newspaper#National, national newspaper based in London. It began in 1785 under the title ''The Daily Universal Register'', adopting its modern name on 1 January 1788. ''The Times'' and its si ...
'' reported that "Davidson occupies a position in the psyche of 1980s schoolchildren similar to that of the
Joey Deacon
Joseph John Deacon (24 May 1920 – 3 December 1981) was a British author and disability advocate.
Biography
Deacon was born with severe cerebral palsy, a neurological condition that left him with neuromuscular spasticity that particul ...
, who had cerebral palsy, for the kids of the 1970s. Both were the subjects of serious television programmes about their disabilities, and both promptly became the victims of nationwide playground mocking campaigns."
A follow-up BBC TV documentary was made about him at age 30, ''The Boy Can't Help It'' (2002), and another, ''
Tourettes: I Swear I Can't Help It'' (2009), caught up with him at age 37.
After leaving school at age 16 without qualifications,
Davidson has worked his whole life as a caretaker at Langlee Community Centre in
Galashiels
Galashiels (; , ) is a town in the Scottish Borders with a population of around 12,600. Its name is often colloquially shortened to "Gala". The town is a major commercial centre for the Borders region with extensive history in the textile in ...
.
He has also done a lot of voluntary
youth work
Youth work is a community support activity aimed at older children and adolescents. Depending upon the culture and the community, different services and institutions may exist for this purpose. In general, it provides an environment where young pe ...
. As of 2002 he was a part-time youth leader at Langlee Community Centre and education complex in Galashiels.
Since the broadcast of ''John's Not Mad,'' Davidson went on to become a "nationally known ambassador for the condition",
"a spokesman for this previously hidden neurological disorder, campaigning to educate people about it."
In 2003 he founded a Borders support group aimed at helping the families of those with the condition.
Working with support groups such as Tourette Scotland and national organisation
Tourettes Action he has visited schools, given talks,
and held workshops on living with Tourette syndrome,
and spoken to groups of police and school teachers on supporting people with the condition. He has organised an annual two-day residential Tourette camp for young people in Galashiels:
"People who feel isolated in their own town can come to Galashiels for a weekend and feel part of a like-minded tribe," said John. "They can shout as loud as they like without worrying about upsetting or offending others. Hopefully, they return to their homes in better fettle and feeling stronger and less isolated."
As of 2019 he was a board member of Tourette Scotland. In 2019 he was awarded an
MBE in recognition of "his efforts to increase understanding of the condition and helping families deal with it across the country."
He has also been a leading member of Borders Action Group, campaigning to save
public service
A public service or service of general (economic) interest is any service intended to address the needs of aggregate members of a community, whether provided directly by a public sector agency, via public financing available to private busin ...
s.
The biographical film ''
I Swear
"I Swear" is a song written by Gary Baker and Frank J. Myers that became a hit for American country music artist John Michael Montgomery in 1993, and for American R&B group All-4-One in 1994.
Released in November 1993, by Atlantic Nashvill ...
'' (directed by
Kirk Jones) was announced in 2024, with
Robert Aramayo
Robert Michael Aramayo (born 6 November 1992) is an English actor. From 2016 to 2017, he played the role of young Eddard Stark in the sixth and seventh season of the HBO series ''Game of Thrones''. In 2021, he starred in the Netflix psychologi ...
to play Davidson.
Films
*''
John's Not Mad'' (1989) –
Q.E.D.
Q.E.D. or QED is an initialism of the List of Latin phrases (full), Latin phrase , meaning "that which was to be demonstrated". Literally, it states "what was to be shown". Traditionally, the abbreviation is placed at the end of Mathematical proof ...
series, by Valerie Kaye, broadcast on the
BBC One
BBC One is a British free-to-air public broadcast television channel owned and operated by the BBC. It is the corporation's oldest and flagship channel, and is known for broadcasting mainstream programming, which includes BBC News television b ...
. Features Davidson.
*''The Boy Can't Help It'' (2002) – directed by Min Clough, produced by Todd Austin, broadcast on BBC One. Features Davidson and Greg Storey.
*''Tourette de France'' (2007) –
Only Human series, broadcast on
Channel 4
Channel 4 is a British free-to-air public broadcast television channel owned and operated by Channel Four Television Corporation. It is state-owned enterprise, publicly owned but, unlike the BBC, it receives no public funding and is funded en ...
. Includes Davidson and
Keith Allen.
*''
Tourettes: I Swear I Can't Help It'' (2009) – Q.E.D. series, directed and produced by Philippa Robinson, executive produced by Todd Austin, broadcast on BBC One.
Features Davidson and Greg Storey.
Features Davidson and Storey.
*''Tourettes & Me'' (2014) – Prospect Cymru film for BBC One, catching up with John Davidson and Greg Storey 12 years on from ‘The Boy Can’t Help It’
*''Tourette's: Teenage Tics'' (2016) – by Min Clough and Todd Austin, broadcast on BBC One. Features Davidson, Storey, Angela Scanlon, Rory Brown and Paul Stevenson.
References
External links
{{DEFAULTSORT:Davidson, John
People educated at Galashiels Academy
People from Galashiels
Place of birth missing (living people)
Living people
People with Tourette syndrome
People with obsessive–compulsive disorder
1971 births
British disability rights activists
21st-century Scottish people
Members_of_the_Order_of_the_British_Empire