Jean-Dominique Bauby
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Jean-Dominique Bauby (; 23 April 1952 – 9 March 1997) was a French journalist, author and editor of the French fashion magazine ''
Elle Elle may refer to: Arts, entertainment and media * Elle (magazine), ''Elle'' (magazine), a fashion publication ** Elle Style Awards * Elle (India), ''Elle'' (India), the Indian edition * Elle (film), ''Elle'' (film), a 2016 French film * ''Elle: ...
''.


Early life and career

Bauby was born in the
14th arrondissement of Paris The 14th arrondissement of Paris ( ), officially named ''arrondissement de l'Observatoire'' (; meaning "arrondissement of the Observatory"; named after the Paris Observatory), is one of the 20 Arrondissements of Paris, arrondissements of Paris, ...
, and grew up in the
1st arrondissement of Paris The 1st arrondissement of Paris (''Ier arrondissement'') is one of the 20 Arrondissements of Paris, arrondissements of the capital city of France. In spoken French, this arrondissement is colloquially referred to as ''le premier'' (the first). I ...
, on Rue du Mont-Thabor, north of the
Tuileries Garden The Tuileries Garden (, ) is a public garden between the Louvre and the Place de la Concorde in the 1st arrondissement of Paris, France. Created by Catherine de' Medici as the garden of the Tuileries Palace in 1564, it was opened to the public in ...
, living in the building where
Alfred de Musset Alfred Louis Charles de Musset-Pathay (; 11 December 1810 – 2 May 1857) was a French dramatist, poet, and novelist.His names are often reversed "Louis Charles Alfred de Musset": see "(Louis Charles) Alfred de Musset" (bio), Biography.com, 2007 ...
had lived. He began his journalism career at ''
Combat Combat (French language, French for ''fight'') is a purposeful violent Conflict (process), conflict between multiple combatants with the intent to harm the opposition. Combat may be armed (using weapons) or unarmed (Hand-to-hand combat, not usin ...
'' and then ''
Le Quotidien de Paris ''Le Quotidien de Paris'' (; The Daily of Paris) was a French newspaper founded in 1974 by Philippe Tesson. Along with ' and ', ''Le Quotidien de Paris'' made up the (Daily Press Group) which employed over 550 individuals," Philippe Tesson : « ...
''. He received his first by-line the day
Georges Pompidou Georges Jean Raymond Pompidou ( ; ; 5 July 19112 April 1974) was a French politician who served as President of France from 1969 until his death in 1974. He previously served as Prime Minister of France under President Charles de Gaulle from 19 ...
died in 1974. At age 28, he was promoted to editor-in-chief of the daily ''
Le Matin de Paris ''Le Matin de Paris'' (, ''The Morning of Paris'') was a French daily newspaper, founded on 1 March 1977 by Claude Perdriel, and disappearing in 1987 ("dépôt de bilan" on 6 May). Its foundation is the subject of the documentary ''Numéros zéro ...
'', before becoming editor of the cultural section of ''
Paris Match ''Paris Match'' () is a French-language weekly gossip magazine. It covers major national and international news along with celebrity lifestyle features. ''Paris Match'' has been considered "one of the world's best outlets for photojournalism". ...
''. He then joined the editorial staff of ''
Elle Elle may refer to: Arts, entertainment and media * Elle (magazine), ''Elle'' (magazine), a fashion publication ** Elle Style Awards * Elle (India), ''Elle'' (India), the Indian edition * Elle (film), ''Elle'' (film), a 2016 French film * ''Elle: ...
'', and later became the magazine's editor. Bauby was in a relationship with Sylvie de la Rochefoucauld for ten years. They had a son and a daughter together. They separated when he began a relationship with Florence Ben Sadoun, also a journalist at ''Elle''.


Memoir

On 8 December 1995, at the age of 43, Bauby had a
stroke Stroke is a medical condition in which poor cerebral circulation, blood flow to a part of the brain causes cell death. There are two main types of stroke: brain ischemia, ischemic, due to lack of blood flow, and intracranial hemorrhage, hemor ...
while driving his son to a night out at the theatre. When he woke up in the hospital twenty days later, he could only blink his left eyelid. He had
locked-in syndrome Locked-in syndrome (LIS), also known as pseudocoma, is a condition in which a patient is aware but cannot move or communicate verbally due to complete paralysis of nearly all voluntary muscles in their body except for vertical eye movements and ...
, in which the mental faculties remain intact but most of the body is paralyzed. In Bauby's case, his mouth, arms, and legs were paralyzed, and he lost in the first 20 weeks after his stroke. Before his stroke, Bauby had signed a contract to write a book. His speech therapist, Sandrine Fichou, arranged a 26-letter alphabet according to the frequency of use, so that he could dictate. Claude Mendibil, a
ghostwriter A ghostwriter is a person hired to write literary or journalistic works, speeches, or other texts that are credited to another person as the author. Celebrities, executives, participants in timely news stories, and political leaders often h ...
and
freelance ''Freelance'' (sometimes spelled ''free-lance'' or ''free lance''), ''freelancer'', or ''freelance worker'', are terms commonly used for a person who is self-employed and not necessarily committed to a particular employer long-term. Freelance w ...
book editor, was sent by his publisher Robert Laffont to take the dictation using a system called partner-assisted scanning. She recited the alphabet until Bauby blinked at the correct letter, and recorded the 130-page manuscript letter by letter over the course of two months, working three hours a day, seven days a week. The resulting book, '' The Diving Bell and the Butterfly'', was published on Friday, 7 March 1997. It went on to become a number one bestseller across Europe and its total sales are now in the millions. At the age of 44, Bauby unexpectedly died from
pneumonia Pneumonia is an Inflammation, inflammatory condition of the lung primarily affecting the small air sacs known as Pulmonary alveolus, alveoli. Symptoms typically include some combination of Cough#Classification, productive or dry cough, ches ...
, two days after the publishing of his book. He is buried in a family grave at the Père-Lachaise cemetery in Paris, France.


Films

A few days after Bauby's death, Bouillon de culture featured the book, and Jean-Jacques Beineix's short documentary, ''Assigné à résidence'' about Bauby in the , with the writer and editor, Claude Mendibil, and Bauby's partner, Florence Ben Sadoun. In 2007, painter and director
Julian Schnabel Julian Schnabel (born October 26, 1951) is an American painter and filmmaker. In the 1980s, he received international attention for his "plate paintings"—with broken ceramic plates set onto large-scale paintings. Since the 1990s, he has been a ...
released a film version of ''The Diving Bell and the Butterfly'' adapted for the screen by
Ronald Harwood Sir Ronald Harwood ( né Horwitz; 9 November 1934 – 8 September 2020) was a South African-born British author, playwright, and screenwriter, best known for his plays for the British stage as well as the screenplays for '' The Dresser'' (for ...
. It starred
Mathieu Amalric Mathieu Amalric (; born 25 October 1965) is a French actor and filmmaker. He has won several César Awards and the Lumière Awards. He is best known internationally for his roles in the James Bond film '' Quantum of Solace'', in which he pla ...
as Bauby. Critically acclaimed, the film received the Best Director Prize at
Cannes Film Festival The Cannes Film Festival (; ), until 2003 called the International Film Festival ('), is the most prestigious film festival in the world. Held in Cannes, France, it previews new films of all genres, including documentaries, from all around ...
, and
Golden Globe Award The Golden Globe Awards are awards presented for excellence in both international film and television. It is an annual award ceremony held since 1944 to honor artists and professionals and their work. The ceremony is normally held every Janua ...
s for Best Foreign Language Film and Best Director, as well as four
Academy Award The Academy Awards, commonly known as the Oscars, are awards for artistic and technical merit in film. They are presented annually by the Academy of Motion Picture Arts and Sciences (AMPAS) in the United States in recognition of excellence ...
nominations. The film was criticized by Bauby's closest circle of friends as not faithful to events and biased in favor of his ex-partner Sylvie de la Rochefoucauld. His late-life partner Florence Ben Sadoun was represented as shunning him after his stroke, although in reality she visited him frequently at the hospital in Berck-sur-Mer where he lived during his final days. Bauby notes her visits in his memoir. Beth Arnold of '' Salon.com'' notes:
The film is said to be "based on a true story," which, of course, is from Bauby's book. The problem is that mixing his factually accurate journey through locked-in syndrome with a personal life that has been fictionalized for film has affected real people who were intensely involved in Bauby's life before and after his accident. Now some of his closest friends feel the movie may forever obscure the truth of his life. They fear this collision between art and reality has created a revisionist history that is accepted by filmgoers around the world, and that this is what will remain in the collective cultural memory. For the first time, they are speaking publicly about it. As one of Bauby's friends says, "There's the Real Story. The Film. And the New Real Story."


References


External links


The Diving Bell and the Butterfly - The Movie
::: Kerosene Creative Services ::
Miramax Miramax, LLC, formerly known as Miramax Films, is an American independent film and television production and distribution company owned by beIN Media Group and Paramount Global. Based in Los Angeles, California, it was founded on December 19, ...
* * {{DEFAULTSORT:Bauby, Jean-Dominique 1952 births 1997 deaths 20th-century French memoirists Burials at Père Lachaise Cemetery Deaths from pneumonia in France French magazine editors Lycée Condorcet alumni French male non-fiction writers Paris Match writers People with hypoxic and ischemic brain injuries French writers with disabilities 20th-century French journalists 20th-century French male writers Writers from Paris People with locked-in syndrome