Jane Susan Campbell
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Jane Susan Campbell, Baroness Campbell of Surbiton, (born 19 April 1959), is a British disability rights campaigner and a
life peer In the United Kingdom, life peers are appointed members of the peerage whose titles cannot be inherited, in contrast to hereditary peers. Life peers are appointed by the monarch on the advice of the prime minister. With the exception of the D ...
in the
House of Lords The House of Lords is the upper house of the Parliament of the United Kingdom. Like the lower house, the House of Commons of the United Kingdom, House of Commons, it meets in the Palace of Westminster in London, England. One of the oldest ext ...
. She was Commissioner of the
Equality and Human Rights Commission The Equality and Human Rights Commission (EHRC) is a non-departmental public body in Great Britain, established by the Equality Act 2006 with effect from 1 October 2007. The Commission has responsibility for the promotion and enforcement of e ...
(EHRC), and served as the Chair of the Disability Committee which led on to the EHRC Disability Programme. She was the former Chair of the Social Care Institute for Excellence (SCIE). She was a Commissioner at the
Disability Rights Commission The Disability Rights Commission (DRC) was established by the British Labour government in 1999. At that time, the DRC was the UK's third equality commission alongside the Commission for Racial Equality and the Equal Opportunities Commission. I ...
(DRC).


Early life

Campbell grew up in
New Malden New Malden is a suburban area in southwest London, England. It is within the Royal Borough of Kingston upon Thames and the London Borough of Merton, and is from Charing Cross. Neighbouring localities include Kingston upon Thames, Kingston, Norb ...
. Her father, Ron, was a heating engineer and her mother, Jesse, was a window dresser in a gown shop. At the age of nine months Campbell did not have the strength in her neck muscles to hold her head up, and exhibited little movement by the age of one year. Her mother consulted the family doctor who referred her to the local
Kingston Hospital Kingston Hospital is an acute hospital in Kingston upon Thames, England. It is managed by the Kingston and Richmond NHS Foundation Trust. It has an emergency department, Accident & Emergency Unit, a popular Maternity unit, and an sexually transmi ...
. She was subsequently referred to
Great Ormond Street Hospital Great Ormond Street Hospital (informally GOSH, formerly the Hospital for Sick Children) is a children's hospital located in the Bloomsbury area of the London Borough of Camden, and a part of Great Ormond Street Hospital for Children NHS F ...
where she was diagnosed with
spinal muscular atrophy Spinal muscular atrophy (SMA) is a rare neuromuscular disorder that results in the loss of motor neurons and progressive muscle wasting. It is usually diagnosed in infancy or early childhood and if left untreated it is the most common geneti ...
and given a prognosis that she would not live to reach the age of two years; however, it was her younger sister, Sally, who died from the same disease before that age. As a child she was prone to getting severe chest infections, which occurred two or three times per year, sometimes requiring hospitalisation.


Education

Campbell went to a segregated school for disabled children where academic achievement was not the top priority. Her best friend, who had a hole in the heart, died at the age of 13 years. She left school at the age of 16 years with no qualifications and hardly able to read or write, but she nevertheless regarded herself as quite intelligent. In 1975 she enrolled at
Hereward College Hereward College of Further Education, better known simply as Hereward College, is a general further education college, specialising for young people with disabilities and additional needs in Tile Hill, Coventry, England. It is governed by the ...
,
Tile Hill Tile Hill is a suburb in the west of Coventry, West Midlands, England. It is mostly residential and partly industrial, with some common land and wooded areas. Tile Hill railway station is located on the West Coast Main Line which links Coven ...
,
Coventry Coventry ( or rarely ) is a City status in the United Kingdom, cathedral city and metropolitan borough in the West Midlands (county), West Midlands county, in England, on the River Sherbourne. Coventry had been a large settlement for centurie ...
; a special college for disabled students where there was an academic environment, and where she was generally able to enjoy the life-style of an ordinary teenager. While there she gained six O-levels and three A-levels within three years. From Coventry she went to
Hatfield Polytechnic The University of Hertfordshire (UH) is a university in Hertfordshire, United Kingdom. The university is based largely in Hatfield, Hertfordshire. Its antecedent institution, Hatfield Technical College, was founded in 1948 and was identified a ...
, and then became an MA at the
University of Sussex The University of Sussex is a public university, public research university, research university located in Falmer, East Sussex, England. It lies mostly within the city boundaries of Brighton and Hove. Its large campus site is surrounded by the ...
with a dissertation on
Sylvia Pankhurst Estelle Sylvia Pankhurst (; 5 May 1882 – 27 September 1960) was an English Feminism, feminist and Socialism, socialist activist and writer. Following encounters with women-led labour activism in the United States, she worked to organise worki ...
.


Career

Following a year in 1983 as an administrator at the Royal Association for Disability and Rehabilitation (RADAR), in 1984 she started her career in local government as Equal Opportunities Liaison Officer, in
Greater London Council The Greater London Council (GLC) was the top-tier local government administrative body for Greater London from 1965 to 1986. It replaced the earlier London County Council (LCC) which had covered a much smaller area. The GLC was dissolved in 198 ...
(GLC) followed by Disability Training Development Officer role, London Boroughs Disability Resource Team (DRT) where she ran the Disability Equality and Awareness training unit. In 1987 she was appointed as a Principal Disability Advisor for
London Borough of Hounslow The London Borough of Hounslow ( ) is a London borough in west London, England, forming part of Outer London. It is governed by Hounslow London Borough Council. The borough stretches from near Central London in the east (Chiswick) to the b ...
. After a year she returned to the DRT as Director of Training where she remained until she established her own disability consultancy in 1994. In the early 1990s she co-chaired the British Council of Disabled People (BCODP) with Lucille Lusk. In 1996 there was a spin-out organisation from BCODP - the
National Centre for Independent Living The National Centre for Independent Living (NCIL) was a non-profit staffed organisation controlled by and run for disabled people active in social care issues to campaign for and support the independent living of disabled people in the community a ...
(NCIL) - which she co-founded and co-directed with Frances Hassler. Campbell worked at NCIL for six years before being appointed by the Minister for Social Care to chair the Social Care Institute for Excellence (SCIE). Also in 1996 she co-authored a textbook entitled ''Disability Politics'', and in 2000 she was awarded the
Member of the British Empire The Most Excellent Order of the British Empire is a British order of chivalry, rewarding valuable service in a wide range of useful activities. It comprises five classes of awards across both civil and military divisions, the most senior two o ...
(MBE), then in 2006 she was appointed a
Dame Commander of the Order of the British Empire The Most Excellent Order of the British Empire is a British order of chivalry, rewarding valuable service in a wide range of useful activities. It comprises five classes of awards across both civil and military divisions, the most senior two o ...
(DBE) in the Queen's Birthday Honours. In 2003, Campbell was awarded an honorary doctorate in law from
Bristol University The University of Bristol is a public research university in Bristol, England. It received its royal charter in 1909, although it can trace its roots to a Merchant Venturers' school founded in 1595 and University College, Bristol, which had ...
and another in social sciences from
Sheffield Hallam University Sheffield Hallam University (SHU) is a public research university in Sheffield, South Yorkshire, England. The university is based on two sites; the City Campus is located in the city centre near Sheffield station, Sheffield railway station, whil ...
. She was Commissioner of the
Disability Rights Commission The Disability Rights Commission (DRC) was established by the British Labour government in 1999. At that time, the DRC was the UK's third equality commission alongside the Commission for Racial Equality and the Equal Opportunities Commission. I ...
until it was wound up in October 2006. From 2006 to 2008, she was commissioner of the
Equality and Human Rights Commission The Equality and Human Rights Commission (EHRC) is a non-departmental public body in Great Britain, established by the Equality Act 2006 with effect from 1 October 2007. The Commission has responsibility for the promotion and enforcement of e ...
(EHRC). She also served as chair of the Disability Committee which led on to the EHRC Disability Programme. On 3 April 2007, after it was announced by the
House of Lords Appointments Commission The House of Lords Appointments Commission (HOLAC) is an independent advisory non-departmental public body in the United Kingdom with oversight of some aspects of the Peerage of the United Kingdom. It has two roles: to recommend at least two peopl ...
she became a
life peer In the United Kingdom, life peers are appointed members of the peerage whose titles cannot be inherited, in contrast to hereditary peers. Life peers are appointed by the monarch on the advice of the prime minister. With the exception of the D ...
and would sit as a
crossbencher A crossbencher is a minor party or independent member of some legislatures, such as the Parliament of Australia. In the British House of Lords the term refers to members of the parliamentary group of non-political peers. They take their name fr ...
. Her
peerage A peerage is a legal system historically comprising various hereditary titles (and sometimes Life peer, non-hereditary titles) in a number of countries, and composed of assorted Imperial, royal and noble ranks, noble ranks. Peerages include: A ...
was
gazetted A gazette is an official journal, a newspaper of record, or simply a newspaper. In English and French speaking countries, newspaper publishers have applied the name ''Gazette'' since the 17th century; today, numerous weekly and daily newspapers ...
as Baroness Campbell of Surbiton, ''of
Surbiton Surbiton is a suburban neighbourhood in South West London, within the Royal Borough of Kingston upon Thames (RBK). It is next to the River Thames, southwest of Charing Cross. Surbiton was in the Historic counties of England, historic county of ...
in the
Royal Borough of Kingston upon Thames The Royal Borough of Kingston upon Thames is a London boroughs, borough in southwest London. The main town is Kingston upon Thames and it includes Chessington, Malden Rushett, New Malden, Surbiton and Tolworth. It is the oldest of the four List ...
'' on 30 March 2007. In her campaigning record, items of public note include the creation and later closure of the
Independent Living Fund The Independent Living Fund was set up in 1988 to fund support for disabled people with high support needs in the United Kingdom, enabling them to live in the community rather than move into residential care. It is run as a non-departmental pu ...
(ILF), the creation of the Community Care (
Direct Payments Direct may refer to: Mathematics * Directed set, in order theory * Direct limit of (pre), sheaves * Direct sum of modules, a construction in abstract algebra which combines several vector spaces Computing * Direct access (disambiguation), a ...
) Act 1996, the loss of some disabled people's welfare benefits, the disproportionate impact of the
COVID-19 pandemic The COVID-19 pandemic (also known as the coronavirus pandemic and COVID pandemic), caused by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), began with an disease outbreak, outbreak of COVID-19 in Wuhan, China, in December ...
on disabled people's lives, and attempts in Parliament and the appeal courts to change the law on assisted dying as it impacts on disabled people.


Personal life

Campbell met her first husband, Graham Ingleson, at
Hereward College Hereward College of Further Education, better known simply as Hereward College, is a general further education college, specialising for young people with disabilities and additional needs in Tile Hill, Coventry, England. It is governed by the ...
; they married in 1987 when she was 27 years old. He was a haemophiliac, and six weeks before the wedding they discovered that he had contracted HIV from a blood transfusion following a car accident in 1985, from which he later died in December 1993. In 2009 she lived in
Tolworth Tolworth is a suburban area in the Surbiton district, Royal Borough of Kingston upon Thames, Greater London. It is southwest of Charing Cross. Neighbouring places include Berrylands, Chessington, Epsom, Ewell, Kingston upon Thames, Kingston, Lo ...
with her second husband Roger Symes, a businessman. Because of her physical weakness Campbell requires help to do almost everything and needs a ventilator to help her breathe at night. She uses an electrically powered
wheelchair A wheelchair is a mobilized form of chair using two or more wheels, a footrest, and an armrest usually cushioned. It is used when walking is difficult or impossible to do due to illnesses, injury, disabilities, or age-related health conditio ...
and has a computer on which she types with one finger. As of 2009, she received a direct payment from the local authority for her care needs, which enabled her to employ five female carers to help her with the routine activities of daily living.


References

{{DEFAULTSORT:Campbell of Surbiton, Jane Campbell, Baroness 1959 births Living people British politicians with disabilities British social welfare officials Crossbench life peers Dames Commander of the Order of the British Empire British disability rights activists Life peeresses created by Elizabeth II Life peers created by Elizabeth II People with spinal muscular atrophy Campbell, Jane Place of birth missing (living people) British royalty and nobility with disabilities British wheelchair users British activists with disabilities