IPPOSI, the Irish Platform for Patients’ Organisations, Science & Industry, is a Company Limited by Guarantee and a charity based in Dublin. It describes itself as "a patient-led organisation that works with patients, government, industry, science and academia to put patients at the heart of health policy and innovation."
Laura Brady is the Chief Executive. It is particularly focussed on issues associated with the use of patients' data. It runs a Patient Education Programme concentrating on
clinical trial
Clinical trials are prospective biomedical or behavioral research studies on human subject research, human participants designed to answer specific questions about biomedical or behavioral interventions, including new treatments (such as novel v ...
s Health Technology Assessment, health information, connected health and rare diseases and on how drug treatments are financed. It works with the
European Patients' Academy on Therapeutic Innovation
European, or Europeans, may refer to:
In general
* ''European'', an adjective referring to something of, from, or related to Europe
** Ethnic groups in Europe
** Demographics of Europe
** European cuisine, the cuisines of Europe and other West ...
(EUPATI) and
Dublin City University
Dublin City University (abbreviated as DCU) () is a Third-level education in the Republic of Ireland, university based on the Northside, Dublin, Northside of Dublin, Republic of Ireland, Ireland. Created as the ''National Institute for Highe ...
's Centre for eIntegrated Care.
It runs conferences and seminars on a variety of topics including data protection.
It is associated with the
European Platform for Patients’ Organisations, Science & Industry, based in
Brussels
Brussels, officially the Brussels-Capital Region, (All text and all but one graphic show the English name as Brussels-Capital Region.) is a Communities, regions and language areas of Belgium#Regions, region of Belgium comprising #Municipalit ...
which was established in 1994 as part of the initiative to promote patients' rights.
References
Health activism
Organisations based in Dublin (city)
Medical and health organisations based in the Republic of Ireland
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