David Sheffield Bell
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David Sheffield Bell is an American physician who has done extensive research on the clinical aspects of
myalgic encephalomyelitis/chronic fatigue syndrome Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disabling Chronic condition, chronic illness. People with ME/CFS experience profound fatigue that does not go away with rest, as well as sleep issues and problems with memory ...
(ME/CFS). He has also conducted evaluations and research in pediatric ME/CFS and written numerous articles about the condition. Bell is retired from a private practice in
general medicine Internal medicine, also known as general medicine in Commonwealth nations, is a medical specialty for medical doctors focused on the prevention, diagnosis, and treatment of diseases in adults. Its namesake stems from "treatment of diseases of th ...
in the town of
Lyndonville, New York Lyndonville is a Administrative divisions of New York#Village, village in Orleans County, New York, Orleans County, New York (state), New York, United States. The population was 838 at the 2010 census. The name was selected because some of the ea ...
which he had started in 1979. Bell also served as Clinical Associate Professor of Pediatrics at the
State University of New York at Buffalo The State University of New York at Buffalo (commonly referred to as UB, University at Buffalo, and sometimes SUNY Buffalo) is a public research university in Buffalo and Amherst, New York, United States. The university was founded in 1846 a ...
, in
Buffalo, New York Buffalo is a Administrative divisions of New York (state), city in the U.S. state of New York (state), New York and county seat of Erie County, New York, Erie County. It lies in Western New York at the eastern end of Lake Erie, at the head of ...
.


Training

Bell is a graduate of
Harvard University Harvard University is a Private university, private Ivy League research university in Cambridge, Massachusetts, United States. Founded in 1636 and named for its first benefactor, the History of the Puritans in North America, Puritan clergyma ...
, class of 1967, with an AB degree in English Literature. He graduated in 1971 from
Boston University Boston University (BU) is a Private university, private research university in Boston, Massachusetts, United States. BU was founded in 1839 by a group of Boston Methodism, Methodists with its original campus in Newbury (town), Vermont, Newbur ...
with an MD degree, and in 1976 completed post-doctoral training in
pediatrics Pediatrics (American English) also spelled paediatrics (British English), is the branch of medicine that involves the medical care of infants, children, Adolescence, adolescents, and young adults. In the United Kingdom, pediatrics covers many o ...
including Pediatric Behavior and Developmental Disorders.


Work on ME/CFS

Bell's interest in ME/CFS began in 1985 when an apparent cluster outbreak of 216 persons occurred in his rural community in upstate New York. He has written extensively on the condition, including a thirteen-year follow-up study of the children who became ill during the original outbreak. Bell was involved in identifying the outbreak in Lyndonville, New York, of what was known at the time as chronic Epstein-Barr virus (now more commonly referred to as ME/CFS). When Bell was interviewed about the outbreak in a 1996 Prime Time Live episode, the reporter described Bell's appeal to the
Centers for Disease Control and Prevention The Centers for Disease Control and Prevention (CDC) is the National public health institutes, national public health agency of the United States. It is a Federal agencies of the United States, United States federal agency under the United S ...
(CDC) for help with the illness, but Bell says the CDC didn't mention a similar outbreak in
Lake Tahoe Lake Tahoe (; Washo language, Washo: ''dáʔaw'') is a Fresh water, freshwater lake in the Sierra Nevada of the Western United States, straddling the border between California and Nevada. Lying at above sea level, Lake Tahoe is the largest a ...
, which he learned about later. He met with other ME/CFS researchers at a 1987 conference, and joined an investigation with researchers Paul Cheney and Elaine DeFreitas involving a possible retrovirus association with chronic fatigue syndrome. In 1990, the researchers presented evidence they found
DNA Deoxyribonucleic acid (; DNA) is a polymer composed of two polynucleotide chains that coil around each other to form a double helix. The polymer carries genetic instructions for the development, functioning, growth and reproduction of al ...
sequences very similar to a known human
retrovirus A retrovirus is a type of virus that inserts a DNA copy of its RNA genome into the DNA of a host cell that it invades, thus changing the genome of that cell. After invading a host cell's cytoplasm, the virus uses its own reverse transcriptase e ...
in some ME/CFS patients, at a conference in
Kyoto, Japan Kyoto ( or ; Japanese: , ''Kyōto'' ), officially , is the capital city of Kyoto Prefecture in the Kansai region of Japan's largest and most populous island of Honshu. , the city had a population of 1.46 million, making it the ninth-most pop ...
. Their study was later published in the
Proceedings of the National Academy of Sciences ''Proceedings of the National Academy of Sciences of the United States of America'' (often abbreviated ''PNAS'' or ''PNAS USA'') is a peer-reviewed multidisciplinary scientific journal. It is the official journal of the National Academy of Scie ...
. A reporter on Prime Time Live stated the announcement made headlines all over the world. The CDC first ignored their findings, then later conducted a study and published a paper that refuted the hypothesis. Bell wrote ''The Doctor's Guide to Chronic Fatigue Syndrome'', which was published in 1995. The book, which also refers to ME/CFS as "chronic fatigue/immune dysfunction syndrome," or CFIDS, describes Bell's CFIDS disability scale. Various publications have used or proposed Bell's scale which is similar to the Karnofsky scale, for the documentation of severity of symptoms in chronic fatigue syndrome. In the 2000 ME/CFS documentary, I Remember Me, Bell appeared in an interview recounting his experiences during the Lyndonville outbreak. In 2003,
Secretary of Health and Human Services The United States secretary of health and human services is the head of the United States Department of Health and Human Services, and serves as the principal advisor to the president of the United States on all health matters. The secretary is ...
Tommy Thompson Tommy George Thompson (born November 19, 1941) is an American politician who served as the 19th United States secretary of Health and Human Services from 2001 to 2005 in the Presidency of George W. Bush, cabinet of President of the United State ...
designated Bell chairperson of the Chronic Fatigue Syndrome Advisory Committee (CFSAC), a panel of 11 experts that provides advice and recommendations to the Secretary of Health and Human Services "on the development and implementation of programs to inform the public; health care professionals; and the biomedical, academic, and research communities about advances related to CFS." Bell also served as a board member of the International Association for Chronic Fatigue Syndrome/ME (IACFS/ME), a professional organization of about 300 members that advocates for the concerns of CFS researchers and clinicians around the world. Bell has retired from private practice, but in 2011 was still doing research on the cause of the illness of ME/CFS patients in Lyndonville NY. Bell currently serves on the Open Medicine Foundation Scientific Advisory Board, which is committed to ending ME/CFS.


References


Further reading

* Be sure to distinguish CFS from depression, Clinical Psychiatry News, April 1, 2005, Volume: 33 Issue: 4 Page: 14(1) * * * * * * * * {{DEFAULTSORT:Bell, David Sheffield American primary care physicians Harvard College alumni Boston University School of Medicine alumni Year of birth missing (living people) Living people Myalgic encephalomyelitis/chronic fatigue syndrome