Cystic Fibrosis Canada is one of national charitable but

not-for-profit corporation A nonprofit corporation is any legal entity which has been incorporated under the law of its jurisdiction for purposes other than making profits for its owners or shareholders. Depending on the laws of the jurisdiction, a nonprofit corporation m ...

established in 1960. Cystic Fibrosis Canada's mandate is to help individuals with

cystic fibrosis Cystic fibrosis (CF) is a genetic disorder inherited in an autosomal recessive manner that impairs the normal clearance of Sputum, mucus from the lungs, which facilitates the colonization and infection of the lungs by bacteria, notably ''Staphy ...

, principally by funding

research and care. The organization also provides educational materials for the cystic fibrosis community and the general public; undertakes

advocacy Advocacy is an Action (philosophy), activity by an individual or advocacy group, group that aims to influence decision making, decisions within political, economic, and social institutions. Advocacy includes activities and publications to infl ...

initiatives with, and on behalf of Canadians with cystic fibrosis, and raises funds to support its programs.

Mission

Cystic Fibrosis

Canada Canada is a country in North America. Its Provinces and territories of Canada, ten provinces and three territories extend from the Atlantic Ocean to the Pacific Ocean and northward into the Arctic Ocean, making it the world's List of coun ...

raises funds in order to promote public awareness, along with supporting research and high-quality cystic fibrosis care.

Research and care

Cystic Fibrosis Canada's primary objective is to fund CF research and care: the organization annually funds approximately 50 research projects, in addition to

scholars A scholar is a person who is a researcher or has expertise in an academic discipline. A scholar can also be an academic, who works as a professor, teacher, or researcher at a university. An academic usually holds an advanced degree or a terminal ...

, post-doctoral fellows, and students undertaking CF investigations. Each year, Cystic Fibrosis Canada awards more than $7 million in grants to CF researchers, and approximately $2 million in grants to the 42 CF clinics, and five transplant centres across the country. To help ensure consistent, high-quality care across the country, Cystic Fibrosis Canada provides support to clinicians through grants, training awards and access to statistical information through the online Canadian Cystic Fibrosis Registry. Canadian researchers are viewed as leaders in the global effort to find a cure or control for cystic fibrosis. In 1989, Canadian researchers, funded by Cystic Fibrosis Canada, discovered the gene responsible for

, and they continue to play a leading role in developing new treatments.

Publications

As well as general information about cystic fibrosis in

, and resources for teachers, parents, and health care professionals, Cystic Fibrosis Canada publishes newsletters and reports covering such areas as research and training grants, clinical services and annual data on patients with cystic fibrosis.

Kin Canada

Since 1964, Kin Canada, a Canadian service

organisation An organization or organisation ( Commonwealth English; see spelling differences) is an entity—such as a company, or corporation or an institution ( formal organization), or an association—comprising one or more people and having a pa ...

, has supported Cystic Fibrosis Canada, raising over $42 million in support of cystic fibrosis research and care.

References

External links

Cystic Fibrosis Canada Web siteCystic Fibrosis Canada Annual Report 2014/2015
{{Authority control Health charities in Canada Kin Canada Cystic fibrosis organizations Organizations established in 1960 Medical and health organizations based in Ontario Rare disease organizations