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(Hilda) Beatriz Miranda-Galarza (born 1971) is an
Ecuadorian Ecuadorians () are people identified with the South American country of Ecuador. This connection may be residential, legal, historical or cultural. For most Ecuadorians, several (or all) of these connections exist and are collectively the source o ...
researcher and the Special Rapporteur on the elimination of discrimination against persons affected by leprosy (Hansen's disease) from 2023.


Life

Miranda-Galarza was born in Ecuador and brought up in a family of eight children. Several of her siblings have intellectual disabilities due to
Fragile X syndrome Fragile X syndrome (FXS) is a genetic neurodevelopmental disorder. The average IQ in males with FXS is under 55, while affected females tend to be in the borderline to normal range, typically around 70–85. Physical features may include a lo ...
. She graduated in sociology at the
Central University of Ecuador The Central University of Ecuador () is a national university located in Quito, Ecuador. It is the oldest and largest university in the country, and one of the oldest universities in the Americas. The enrollment at the university is over 10,000 ...
and she completed a master's degree in
Latin American Studies Latin American studies (LAS) is an academic and research field associated with the study of Latin America. The interdisciplinary study is a subfield of area studies, and can be composed of numerous disciplines such as economics, sociology, histor ...
also in Ecuador. She already had an interest in the health of minorities when she left her family in Ecuador to study anthropology in Belgium. She can speak several languages including Spanish, Italian, Portuguese and in English she completed her doctorate degree in the British city of Leeds. Her thesis was in disability studies and it was titled ''Family and disability in Ecuador: a critical social and cultural analysis of the concept of intellectual disability.'' The research looked at families from different racial groups where some members were labelled as "disabled"''.'' She did research in Indonesia in leading research into the stigmatisation associated with
leprosy Leprosy, also known as Hansen's disease (HD), is a Chronic condition, long-term infection by the bacteria ''Mycobacterium leprae'' or ''Mycobacterium lepromatosis''. Infection can lead to damage of the Peripheral nervous system, nerves, respir ...
. In 2017 the
Human Rights Council The United Nations Human Rights Council (UNHRC) is a United Nations body whose mission is to promote and protect human rights around the world. The Council has 47 members elected for staggered three-year terms on a regional group basis. The ...
established a new
UN Special Rapporteur Special rapporteur (or independent expert) is the title given to independent human rights experts whose expertise is called upon by the United Nations (UN) to report or advise on human rights from a thematic or country-specific perspective. De ...
to look at the elimination of discrimination against persons affected by leprosy.
Alice Cruz Alice Cruz is a Portuguese anthropologist who became a lawyer and the UN Special Rapporteur on the human rights of people with leprosy (Hansen's disease). Life Cruz was born in Ecuador and she first established herself as a medical anthropolo ...
was appointed and served until 2023 when she was succeeded by Miranda-Galarza whose amended job title was "Special Rapporteur on the elimination of discrimination against persons affected by leprosy (Hansen’s disease) and their family members". Miranda-Galarza has lived in Mexico since 2018 where she works in critical disability studies at the Institute of Critical Studies in Mexico City. She believes that human rights principles can prevent people from seeing those affected by leprosy as just targets for care. She is working at a time when the
World Health Organisation The World Health Organization (WHO) is a specialized agency of the United Nations which coordinates responses to international public health issues and emergencies. It is headquartered in Geneva, Switzerland, and has 6 regional offices and 15 ...
is targeting the elimination of leprosy. In 2024 she was one of many UN Special Rapporteurs who signed an open letter to the "International community" on the third anniversary of the
Taliban , leader1_title = Supreme Leader of Afghanistan, Supreme leaders , leader1_name = {{indented plainlist, * Mullah Omar{{Natural Causes{{nbsp(1994–2013) * Akhtar Mansour{{Assassinated (2015–2016) * Hibatullah Akhundzada (2016–present) ...
taking change in Afghanistan. They were concerned that the regime's human-rights abuses particularly against women and girls may become accepted. They encouraged the
International Criminal Court The International Criminal Court (ICC) is an intergovernmental organization and International court, international tribunal seated in The Hague, Netherlands. It is the first and only permanent international court with jurisdiction to prosecute ...
to take urgent action against those responsible.


Publications include

''The power of personal knowledge: reflecting on conscientization in lives of disabled people and people affected by leprosy in Cirebon, Indonesia'', 2013 (with others) ''Traveling through Remembrance as Praxis with Disability Baggage'', 2014 ''Rethinking Disability: World Perspectives in Culture and Society, 2016 (co-author)'' In a chapter of the 2016 handbook, ''Disability in the Global South: The Critical Handbook'', she and Siobhan Senier argue that even after de-colonisation, imperial ideas and constructs remain which effects people with disabilities. Her 2018 publication whose title translates as ''Our history is not a lie'' covers research into the lives and discrimination of people with leprosy.


References

{{DEFAULTSORT:Miranda Galarza, Beatriz 1971 births Living people 21st-century Ecuadorian lawyers United Nations special rapporteurs Ecuadorian women lawyers Leprosy activists People from Mexico City Alumni of the University of Leeds Central University of Ecuador alumni