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Caudal Regression Syndrome
Caudal regression syndrome, or sacral agenesis (or hypoplasia of the sacrum), is a rare birth defect. It is a congenital disorder in which the fetal development of the lower spine—the caudal partition of the spine—is abnormal. It occurs at a rate of approximately one per 60,000 live births.Medline Plus. Caudal Regression Syndrome.https://medlineplus.gov/genetics/condition/caudal-regression-syndrome/#frequency Some babies are born with very small differences compared to typical development, and others have significant changes. Most grow up to be otherwise typical adults who have difficulty with walking and incontinence. Signs and symptoms This condition exists in a variety of forms, ranging from partial absence of the tail bone regions of the spine to absence of the lower vertebrae, pelvis and parts of the thoracic and/or lumbar areas of the spine. In some cases, where only a small part of the spine is absent, there may be no outward sign of the condition. In cases where m ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Hypoplasia
Hypoplasia (from Ancient Greek ὑπo- ''hypo-'' 'under' + πλάσις ''plasis'' 'formation'; adjective form ''hypoplastic'') is underdevelopment or incomplete development of a tissue or organ. Dictionary of Cell and Molecular Biology (11 March 2008) Although the term is not always used precisely, it properly refers to an inadequate or below-normal number of cells.Hypoplasia Stedman's Medical Dictionary. lww.com Hypoplasia is similar to aplasia, but less severe ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Spencer West
Spencer West (born January 7, 1981) is an American motivational speaker and disability advocate. West became an amputee after being born with sacral agenesis. He speaks about overcoming adversity and uses social media to advocate for the disability justice movement and the LGBT community. His speaking fees range from $10,000 to $15,000. Early life and education Spencer West was born on January 7, 1981, in Rock Springs, Wyoming, to Tonette and Kenny West. He has a sister named Anne. West was born with a birth defect, sacral agenesis, causing his spine and legs to not work properly. When he was three years old, his legs were amputated to his knees. Prosthetics did not work, so doctors removed his legs when West was five years old. He learned to move around using his hands and a wheelchair. West was bullied as a child for his disability. He was a cheerleader at Rock Springs High School. He attended Westminster College where he earned a degree in communications. Career West mov ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Rose Siggins
Rose Marie Homan (December 8, 1972 – December 12, 2015), better known by her stage (and married) name Rose Siggins, was an American actress best known for her portrayal of Legless Suzi on '' American Horror Story: Freak Show''. Siggins was born with sacral agenesis, and because of this, as she recalled, "my legs were severely deformed, with the feet pointing in opposite directions." Her parents decided to have her legs amputated. According to herself, she was the only person with sacral agenesis to have carried and given birth to a baby who was not disabled. She was married and had a son, Luke, and a daughter, Shelby. She was born in Pueblo, Colorado, and died in Denver, Colorado Denver () is a consolidated city and county, the capital, and most populous city of the U.S. state of Colorado. Its population was 715,522 at the 2020 census, a 19.22% increase since 2010. It is the 19th-most populous city in the United ..., of an infection secondary to kidney surgery on De ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Jessica Rogers
Jessica Rogers (born 9 March 1997) is an American wheelchair basketballer, wheelchair racing, wheelchair racer and swimmer. She is also the founder of the ''International Sacral Agenesis/Caudal Regression Syndrome Association'', or iSACRA, an organization for information sharing, support, and networking. Early life Rogers was born in Brazil where she spent the first part of her life in an isolated crib in a care facility for adults with severe cognitive limitations. At 14 months old she was adopted into a single parent household with many siblings who have different special needs. Jessica was born with the rare condition of lumbosacral agenesis/caudal regression syndrome and has had bilateral leg amputations due to the condition. Her spine ends at approximately T 7–10, which caused some paralysis. Jessica was born with one kidney and a very small lower anatomy, a common trait associated with caudal regression syndrome. She graduated from Wilbert Tucker Woodson High School in 20 ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Victoria Pendergast
Victoria "Tori" Pendergast (born 25 January 1991) is an Australian F58 athletics shot put competitor and LW12.1 classified Para-alpine skier. When she competed at the 2014 Winter Paralympics in Sochi, she became Australia's first female sit skier at the Winter Paralympics. She competed in two events, finishing seventh in women's slalom sit-ski and tenth in the women's giant slalom sit-ski. She also won a silver and a bronze medal in the slalom and super-G at the 2013 North America Cup, and a bronze medal in the giant slalom at the 2013 IPC World Cup in Thredbo. Personal Victoria "Tori" Pendergast was born in Gosford, New South Wales on 25 January 1991. She has sacral agenesis, and was born missing the lower part of her spine. She attended Loreto Normanhurst, and in 2013 she graduated with a degree in business and marketing from the University of Technology, Sydney. In early 2014, she was working as a telemarketer. She is an F58 classified shot put competitor who finis ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Sainimili Naivalu
Sainimili Naivalu (1986–2019) was a paralympic athlete and disability activist from Fiji. She represented Fiji in international wheelchair table tennis competitions and was awarded gold and silver medals. Biography Naivalu was born in 1986 and was from Dakuibeqa on Beqa island in Fiji. She was born with caudal regression syndrome, which meant that she was a wheelchair user all her life. Her father was a church elder and her mother a housewife. She was a member of the Spinal Injury Association in Fiji. She was also a representative of the Fiji Disabled People's Federation. She was vocal about how people with disabilities needed to be consulted so that Fiji could progress to greater inclusivity. She saw three central concerns for disabled people in Fiji: accessibility, medical supplies and security - in particular in the aftermath of natural disasters. A wheelchair table tennis para-athlete, Naivalu competed at an international level, winning a silver medal in doubles table t ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Kevin McKee (sledge Hockey)
Kevin McKee (born February 11, 1990) is an American ice sled hockey player. Early life and career McKee was born in Davenport, Iowa. He was born with sacral agenesis. He won a gold medal with the American team at the 2014, 2018 and 2022 Winter Paralympics The 2022 Winter Paralympics (), commonly known as Beijing 2022 (), was an international winter multi-sport parasports event held in Beijing, China from 4 to 13 March 2022. This was the 13th Winter Paralympic Games, as administered by the Inte .... References External links * * {{DEFAULTSORT:McKee, Kevin 1990 births Living people American sledge hockey players Paralympic sledge hockey players of the United States Paralympic gold medalists for the United States Ice sledge hockey players at the 2014 Winter Paralympics Para ice hockey players at the 2018 Winter Paralympics Para ice hockey players at the 2022 Winter Paralympics Medalists at the 2014 Winter Paralympics Medalists at the 2018 Winter Paralympics ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Bobby Martin (American Football)
Bobby Martin (November 3, 1987 – April 28, 2020) nicknamed "Bobby No Legs”, was born with Caudal regression syndrome. As he had no legs or hips, he used his arms to run. A graduate of Colonel White High School in Dayton, Ohio, he played defensive lineman for his high school varsity team. He later attended Central State University. Biography Martin was tall and weighed as he was born with a significant form of Caudal regression syndrome which resulted in being born without hips or legs. During his 2005 high school senior season, he was removed from play at half-time in a game against Mount Healthy High School by officials claiming he was in breach of league rules requiring players to wear thigh pads, knee pads and shoes. Colonel White High School was later told by the Ohio High School Athletic Association that this decision was incorrect and Martin was allowed to continue to finish the season. He finished the season with 48 tackles. At halftime of one game, he was named the ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Kurt Fearnley
Kurt Harry Fearnley, (born 23 March 1981) is an Australian Wheelchair racing, wheelchair racer, who has won gold medals at the Paralympic Games and 'crawled' the Kokoda Track. He has a Birth defect, congenital disorder called Caudal regression syndrome, sacral agenesis which prevented fetal development of certain parts of his lower spine and all of his sacrum. In Paralympic events he is classified in the T54 (classification), T54 classification. He focuses on long and middle-distance wheelchair races, and has also won medals in sprint relays. He participated in the Athletics at the 2000 Summer Paralympics, 2000, Athletics at the 2004 Summer Paralympics, 2004, Athletics at the 2008 Summer Paralympics, 2008, Athletics at the 2012 Summer Paralympics, 2012 and Athletics at the 2016 Summer Paralympics, 2016 Summer Paralympic Games, finishing his Paralympic Games career with thirteen medals (three gold, seven silver and three bronze). He won a gold and silver medal at the 2018 Common ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Johnny Eck
John Eckhardt Jr, (August 27, 1911 – January 5, 1991), professionally billed as Johnny Eck, was an American freak show performer in sideshows and a film actor. Born with sacral agenesis, Eck is best known today for his role in Tod Browning's 1932 cult classic film '' Freaks'' and his appearances as a bird creature in several Tarzan films. He was often billed as "The Amazing Half-Boy", "King of the Freaks" and "The Most Remarkable Man Alive". Besides being a sideshow performer and actor, the multi-talented Eck was also an artist, musician, photographer, illusionist, penny arcade owner, Punch and Judy operator, and expert model-maker. Early life John Eckhardt Jr. was born on August 27, 1911, to Emilia (born 1876) and John Eckhardt, Sr. (born 1874) in Baltimore, Maryland, as a fraternal twin. His brother Robert Eckhardt was also a performer and he had an older sister named Caroline Laura Eckhardt. Eck was born with a truncated torso due to sacral agenesis. Though Eck would som ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Kenny (1988 Film)
''Kenny'' (also known as ''The Kid Brother'') is a 1988 film featuring Kenny Easterday in a semi-autobiographical role. Plot The film follows how 13-year-old Kenny, his family and neighborhood deal with the intrusion of a French-speaking Quebec crew filming a documentary about Kenny's adaptation to his unusual congenital condition, the absence of his pelvis and legs. It was filmed in the Pittsburgh suburb of West Aliquippa, Pennsylvania, United States. Cast * Kenny Easterday as Kenny * Caitlin Clarke as Sharon * Liane Curtis as Sharon Kay *Zach Grenier as Jesse *Jesse Easterday, Jr. as Eddy * Bingo O'Malley as Mr. Nilan Awards and nominations ''Kenny'' won the Special Jury Prize at the Paris Film Festival (1988), Grand Prix des Amériques at the Montreal World Film Festival (1987), and UNICEF Award - Honorable Mention and C.I.F.E.J. Award at the Berlin International Film Festival The Berlin International Film Festival (german: Internationale Filmfestspiele Berlin), usually ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Kenny Easterday
Kenneth Easterday (December 7, 1973 – February 12, 2016) was an American man born with the rare disability, sacral agenesis. To improve his mobility, his legs were amputated at the hip when he was six months old. Life and career He was born in Aliquippa, Pennsylvania. The amputations took place in two stages. The first amputation surgery took Easterday's shin bones, which were used to replace his missing spinal column. At the time of Easterday's first amputation surgery he was only expected to live six months to one year. At six months of age, Easterday underwent a second and final amputation surgery which involved amputating the rest of his remaining legs at the hips. Easterday gained some notability following the 1988 release of the Canadian movie '' Kenny'' (1988), in which he played a fictionalized version of himself. He was a regular on '' The Jerry Springer Show'' in which he functioned as "The Messenger". He was also the focus of a 2010 TLC special titled ''The Man w ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
