Susannah Cahalan
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Susannah Cahalan (born January 30, 1985) is an American journalist and author, known for writing the memoir '' Brain on Fire: My Month of Madness'', about her hospitalization with a rare auto-immune disease, anti-NMDA receptor encephalitis. She published a second book, ''The Great Pretender: The Undercover Mission That Changed Our Understanding of Madness'', in 2019. When she is not writing longer works, she works as a journalist for the ''
New York Post The ''New York Post'' (''NY Post'') is a conservative daily tabloid newspaper published in New York City. The ''Post'' also operates NYPost.com, the celebrity gossip site PageSix.com, and the entertainment site Decider.com. It was established ...
''. Cahalan's work has raised awareness for her brain disease, making it more well-known and decreasing the likelihood of misdiagnoses.


Personal Life and Career


The Writing of ''Brain on Fire: My Month of Madness''

As Cahalan was a journalist for the New York Post before she became ill, her editor suggested that she write about her disease and how it impacted her. As she recovered from her brain illness, she decided to bring the same journalistic approach to writing her memoir, using fact and research as the foundation for her story. According to Cahalan, it was a "very dissociative process" to write about her experience with the disease. She had to recreate the time-line of everything that happened, gathering different records from the hospital to keep track of what happened and when. Through interviewing those closest to her, she was able to piece together what that month looked like. Overwhelmingly, what she remembered from her disease was the fear and anger that it created within her. Writing her book, she said, felt like regaining control over the body that had controlled her for so long.


Current Affairs

Cahalan still writes for the New York Post with articles published frequently. She gave a lecture at the opening session of the American Psychiatric Association's 2017 meeting. She presents talks for hospitals and universities to raise awareness about her disease. She resides in Brooklyn, New York, sharing a home with her husband, twin boys, and dog.


Anti-NMDA Receptor Encephalitis


Disease Presentation and Misdiagnoses

Susannah’s disease manifested in 2009 when she was just 24 years old. It began with sensory issues, which she later described in her article, "My Mysterious Lost Month of Madness" as experiencing the world “brighter, louder, more painful.” She also began experiencing numbness in the whole left side of her body, and paranoid hallucinations of bed bug bites. Concerned by the numbness, Cahalan sought out a neurologist who ran multiple inconclusive tests including two normal MRIs. Susannah began experiencing severe insomnia and continued behavioral abnormalities. One night at her boyfriend’s apartment, she had a
grand mal seizure Grand may refer to: People with the name * Grand (surname) * Grand L. Bush (born 1955), American actor * Grand Mixer DXT, American turntablist * Grand Puba (born 1966), American rapper Places * Grand, Oklahoma * Grand, Vosges, village and commun ...
and woke up in St. Luke’s Hospital. Cahalan describes the hospital neurologist as dismissive, and she received her first of multiple misdiagnoses: alcohol withdrawal. Psychiatrists also misdiagnosed her with
schizophrenia Schizophrenia is a mental disorder characterized by continuous or relapsing episodes of psychosis. Major symptoms include hallucinations (typically hearing voices), delusions, and disorganized thinking. Other symptoms include social w ...
and bipolar I disorder. Cahalan was released from the hospital and as her disease worsened, she had another grand mal seizure.


Hospital Stay

After her second seizure, Cahalan’s parents took her to the hospital for an EEG and demanded that she not be taken to a psychiatric floor. Unlike many anti-NMDA cases, Cahalan was never admitted to a psychiatric ward. While at the hospital, Susannah had her third seizure and was immediately placed on the epilepsy floor of New York University’s Medical Center. Susannah’s hallucinations and delusions soared during the month she spent in the hospital. Susannah had two
lumbar puncture Lumbar puncture (LP), also known as a spinal tap, is a medical procedure in which a needle is inserted into the spinal canal, most commonly to collect cerebrospinal fluid (CSF) for diagnostic testing. The main reason for a lumbar puncture is ...
procedures that revealed high white blood cell counts. Because high white blood cells count signify brain swelling, the case was officially passed to neuro-pathologist and epileptologist, Dr. Souhel Najjar at NYU medical center.


Diagnosis (Anti-NMDA Receptor Encephalitis)

Dr. Najjar had Cahalan perform a “clock test," which involves the patient drawing the face of a clock. When Cahalan drew her clock, she was only able to recreate half of it, indicating injury to one side of her brain. After a brain biopsy, it was concluded that Cahalan's issue was not psychiatric, but the result of anti-NMDA encephalitis, a brain-inflammation disease with an unknown cause. She was only the 217th person diagnosed with this illness.


Treatment and Recovery

In order to treat her disease, she was given an assortment of different steroids, infusions, and plasmapheresis. She made a full recovery without suffering long-term brain damage.


Film Adaptation

Netflix released a feature film based on Susannah Cahalan’s memoir, ''Brain on Fire''. The movie, which shares the title of the book, was directed by Irish filmmaker, Gerard Barrett. Chloe Grace Moretz portrays Cahalan in the film, which chronicles the events leading to Cahalan’s misdiagnosis, hospitalization, and eventual diagnosis and recovery.


Book about David Rosenhan

In 2019, Cahalan's second book was published, ''The Great Pretender: The Undercover Mission That Changed Our Understanding of Madness''. In the work she accuses psychologist David Rosenhan of fabricating the results of seminal research published in the journal ''
Science Science is a systematic endeavor that builds and organizes knowledge in the form of testable explanations and predictions about the universe. Science may be as old as the human species, and some of the earliest archeological evidence ...
''. Rosenhan's work demonstrated that staff working at psychiatric hospitals, including psychiatrists, could be easily misled to diagnose
schizophrenia Schizophrenia is a mental disorder characterized by continuous or relapsing episodes of psychosis. Major symptoms include hallucinations (typically hearing voices), delusions, and disorganized thinking. Other symptoms include social w ...
when individuals were perfectly sane and reported the mistreatment of patients in these facilities. Cahalan was drawn to this study due to her own experiences with being improperly diagnosed with mental illness, but as she researched Rosenhan and his activity, she began to find contradictions in his work that made her question the validity of his experiment.


Awards

Cahalan has been awarded the Poynter Fellowship in Journalism from Yale University,  the Richardson Seminar in the History of Psychiatry from Cornell in 2020, and the Spitzer Memorial lecture from Columbia University in 2020.


References


External links

* * * Living people American women journalists New York Post people Place of birth missing (living people) Journalists from New York City Writers from New York City 21st-century American non-fiction writers Women memoirists 21st-century American women writers 1985 births Washington University in St. Louis alumni {{US-journalist-1980s-stub