Project ALS is a

non-profit A nonprofit organization (NPO) or non-profit organisation, also known as a non-business entity, not-for-profit organization, or nonprofit institution, is a legal entity organized and operated for a collective, public or social benefit, in co ...

organization whose mission is to identify and support leading scientific research toward the first effective treatments and a cure for ALS. Founded in 1998 by Jenifer Estess, Valerie Estess, Meredith Estess, and Julianne Hoffenberg, Project ALS recruits scientists and doctors to work together toward a better understanding of ALS and other closely related neuro-degenerative diseases.

History

Project ALS was founded in 1998 as a

non-profit organization A nonprofit organization (NPO) or non-profit organisation, also known as a non-business entity, not-for-profit organization, or nonprofit institution, is a legal entity organized and operated for a collective, public or social benefit, in co ...

when Jenifer Estess, a 35-year-old New York theater and film producer, was diagnosed with ALS. Historically, scientists working separately on various aspects of the disease conducted ALS research. Project ALS changed that approach by requiring that researchers and doctors work together, share data openly, and meet research milestones. Project ALS's Research Advisory Board (RAB) brings together accomplished scientists to seek out the most promising research and set the agenda for the entire research field.

Celebrity involvement

The following people and groups have been involved with Project ALS: *

Julianna Margulies Julianna Margulies (; born June 8, 1966) is an American actress. After several small television roles, Margulies achieved wide recognition for her starring role as Carol Hathaway on NBC's long-running medical drama series '' ER'' (1994–2009) ...

Anne Meara Anne Meara Stiller (September 20, 1929 – May 23, 2015) was an American actress and comedian. Along with her husband Jerry Stiller, she was one-half of the prominent 1960s comedy team Stiller and Meara. Their son is actor, director, and producer ...

Caroline Rhea Caroline Gilchrist Rhea (; born April 13, 1964) is a Canadian actress and stand-up comedian, who is best known for her role as Hilda Spellman on the ABC series ''Sabrina the Teenage Witch''. She has performed numerous comedy specials, including t ...

Debora Spar Debora L. Spar is the current Senior Associate Dean of Harvard Business School Online and former President of Barnard College, a liberal arts college for women of Columbia University. As President of Barnard, she was also an academic dean within ...

* Thomas Jessel *

Northport High School Northport High School is a four-year secondary school in East Northport, New York, that serves as the high school for the Northport-East Northport Union Free School District which is composed of Northport, Eatons Neck, Asharoken and much of East N ...

Donna Hanover Donna Hanover (born Donna Ann Kofnovec; February 15, 1950) is an American journalist, radio and television personality, television producer, and actress, who appears on CUNY TV in New York City. From 1994 through 2001 she was First Lady of New Yo ...

Edie Falco Edith Falco (born July 5, 1963) is an American actress. She is best known for portraying Carmela Soprano on the HBO series ''The Sopranos'' (1999–2007), and Nurse Jackie Peyton on the Showtime series ''Nurse Jackie'' (2009–2015). She also ...

Ben Stiller Benjamin Edward Meara Stiller (born November 30, 1965) is an American actor, comedian, and filmmaker. He is the son of the comedians and actors Jerry Stiller and Anne Meara. Stiller was a member of a group of comedic actors colloquially known ...

References

External links

Project ALS
{{authority control Charities based in New York City Organizations established in 1998 Health charities in the United States Neurology organizations Amyotrophic lateral sclerosis Medical and health organizations based in New York City 1998 establishments in New York City