The Children's Craniofacial Association (CCA) is a United States-based
nonprofit organization
A nonprofit organization (NPO) or non-profit organisation, also known as a non-business entity, not-for-profit organization, or nonprofit institution, is a legal entity organized and operated for a collective, public or social benefit, in co ...
supporting individuals and families with facial disfigurements. CCA is a family support organization recognized by governmental, educational and medical healthcare agencies across the US.
Children's Craniofacial Association's National Spokesperson is actor, entertainer Cher
Cher became CCA's National Spokesperson in 1990. In 1985, Cher starred in the movie
Mask
A mask is an object normally worn on the face, typically for protection, disguise, performance, or entertainment and often they have been employed for rituals and rights. Masks have been used since antiquity for both ceremonial and pra ...
,a film about the life of Rocky Dennis, who had a rare craniofacial condition called Craniodiaphyseal Dysplasia. Cher attended an event in Washington, DC in September 1990, where families affected by craniofacial conditions testified before the House Budget Committee. During that week, she joined ten families on a visit to the White House hosted by then, First Lady,
Barbara Bush
Barbara Pierce Bush (June 8, 1925 – April 17, 2018) was First Lady of the United States from 1989 to 1993, as the wife of President George H. W. Bush, and the founder of the Barbara Bush Foundation for Family Literacy. She previously w ...
. During her
Love Hurts
"Love Hurts" is a song written and composed by the American songwriter Boudleaux Bryant. First recorded by the Everly Brothers in July 1960, the song is most well known from the 1974 international hit version by Scottish hard rock band Nazare ...
,
Believe and
Farewell Tour
A concert tour (or simply tour) is a series of concerts by an artist or group of artists in different cities, countries or locations. Often concert tours are named to differentiate different tours by the same artist and to associate a specific to ...
s, Cher often invited children with craniofacial conditions back stage to visit.
Publications
Quarterly Newsletter
CCA publishes a quarterly newsletter containing articles written by craniofacial surgeons, healthcare providers, family members and others.
See also
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Goldenhar syndrome
Goldenhar syndrome is a rare congenital defect characterized by incomplete development of the ear, nose, soft palate, lip and mandible on usually one side of the body. Common clinical manifestations include limbal dermoids, preauricular skin ta ...
*
Peter Dankelson
References
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Medical and health organizations based in Texas