International organizations
On February 27, 2004, the International Alliance of Carers Organizations (IACO) was launched by family caregiving organizations from Australia, the UK, Sweden, the Netherlands, and the U.S. The mission of the organization is threefold: * to increase visibility of family caregiving across the lifespan as an international issue; * to promote the sharing of best practices in caregiving programs between countries; and * to encourage and provide assistance to countries interested in developing family carer organizations. IACO is headquartered in London. Initial IACO projects included promotion of a United Nations Day for Carers and a presentation on the IACO as part of a half-day workshop at the International Federation on Ageing conference in Singapore on August 4, 2004. National family carer organizations in all countries are encouraged to join the alliance.Australia
Australia has a population of over 22 million people. Of these 2.5 million are carers. In Australia, carers are defined as people, usually family members, who provide support to children or adults who have a disability, mental health problem, chronic condition, who are frail aged or have drug or alcohol dependencies. Carers can be parents, partners, brothers, sisters, friends or children of any age. They may care for a few hours a week or all day every day. In Australia, many carers are eligible for government benefits, while others are employed or have a private income. Carers in Australia receive recognition and support in a number of ways: * Each of the six states and two territories have a non-government, non-profit organisation that advocates on behalf of carers through the Network of Carers Associations. They also provide information and support programs for carers. * The Australian Government has supported carers since 1983 by providing carer income support and later pensions. * Australian governments at all levels provide funding for carer-specific programs including carer support groups, respite, counselling for carers and in-home care for the person being cared for. Other programs assist specific groups of carers like young carers and ageing parent carers of adult children. Parent carers of children with disabilities have received financial support since 1998. * In October 2010, the Australian Parliament passed the Carer Recognition Act. For an analysis of the legislation, visit the Australian Parliamentary Library's Bills Digest. * Many states have carer recognition laws mandating the consideration of carers in all state policy. New South Wales, for instance, enacted the Carers (Recognition) Act in May 2010. * Carers Australia, as part of its support for young people established the Australian National Young Carers Action Team (ANYCAT) in 2007, and following the formation held the "BringIT" conference in 2008. * Carers Queensland started its "Young Carers Action Committee" in October 2009, however at its first formal meeting in November 2009 the members changed its name to "Young Carers Action Board Queensland" (YCABQ) – however some board members had reservations over the use of its initials believing that some people may get it confused with Yellow Cabs. * In the latter part of 2010 the Australian Government conducted consultations with the Australian community to formulate aThe future for carers in Australia
Australia has one of the lowest population densities in the world. It has a land mass the size of the United States of America, but a population which is a fraction of the size. Providing services to carers in remote locations continues to beset the carer community in Australia. Many Aboriginal and Torres Strait Islander (ATSI) carers and culturally diverse carers have poor access to carer support services. The remoteness of many Aboriginal communities and their cultural approach to caring plays a part in low access rates to these services. Carer advocates work to try to address this situation. In May 2009, the Australian Government completed an inquiry into better support for carers leading to the expectation that more will be achieved for carers in the future. It initiated a feasibility study into a national social insurance scheme to replace an inadequate network of existing support for people living with disability and their carers. The draft report was completed in early 2011. National carer recognition legislation was introduced into the Australian Parliament in March 2010 and passed after the national elections in August 2010. Schedule 1 of the legislation contains ''The Statement for Australia's Carers''. Caring is now seen as a community responsibility in Australia as evidenced by the comments of those surveyed on the issue. The formerly private world of carers is becoming a public concern as Australia, like other ageing populations, feels a shortage of carers. Further information on Australia's carers can be found at the websites oEurope
EUROFAMCARE aims to provide a European review of the situation of family carers of elderly people in relation to the existence, familiarity, availability, use and acceptability of supporting services. In 2003 six countries (Germany, Greece, Italy, Poland, Sweden, United Kingdom) formed a trans-European group, systematically representing the different types of welfare-states in Europe and started a comparative study. The Pan-European Group consists of 23 countries (including the six countries, which are represented by the members of the Consortium). The last step is a feedback research action phase based both on the study results and on the pan-European expertise. A European Carers' Charter in progress will be further developed by the new European network organization EUROCARERS in order to stimulate further activities both on national and European policy levels. EUROCARERS was formally launched in June 2007 to provide a united voice at European level and influence policy both nationally and within theFinland
There are over 300,000 (estimate) family carers in Finland *Of them some 29,000 receive family carer's allowance from their respective municipalities under The Act on Family Caregiving *The municipality may arrange various social and healthcare services to backup family caring. The main types of services are home help and home nursing; meals on wheels; rehabilitation, short-term care etc. *The law ensures a minimum caregiver allowance of EUR 310.Caregivers in heavy caring situations will receive a minimum of EUR 620 a month (taxable). *Time off for the carer: at least 3 days / month *When the carer is continuously or with only minor interruptions tied up to caring. *The Municipality has to ensure that the care for the care recipient is appropriate during the family carer's time-off. Taking days-off or recreational time do not reduce the amount of family carer allowance.Scotland
Policy and legislation in relation to caregivers living in Scotland is somewhat different from that in England, Wales and Ireland. Carers are defined by the Scottish Census as being "individuals who look after, or give any help or support to family members, friends, neighbours and others because of long-term physical or mental ill health or disability or problems related to old age" (Scotland's Census Results Online CROL Estimates from the 2001 census put the numbers of carers in Scotland at 481,579. Of these, 175,969 are reported to provide more than 20 hours of care a week, and 24% provide more than 50 hours of care. Carers who provide care for 20 hours a week or more are regarded as at the 'heavy end' of caring (Parker 1990). This assumes that they are the most involved carers, providing both personal and physical care, resulting in high levels of stress and most in need of support services. Many of these carers however, continue to provide care without support from social work or health services and because of this they remain hidden or invisible (Scottish Executive 2006, Cavaye 2006). Carers are viewed by the government as an important resource and in recent years have been given increasing recognition in health and social care policy. Since devolution in 1999 legislation and policy for caregivers has been developed by the former Scottish Executive (now Scottish Government). Carers in Scotland are regarded as 'partners' in the provision of care. As a result, support services provided to carers are regarded as part of the overall package of care to the person being looked after. This means that carers are not seen as service users and are therefore not responsible for the cost of any service provided. The exception to this is when a carer is looking after their partner; in that situation their income may be taken into account during a financial assessment. This situation is different from that which exists in England where carers are viewed as services users in their own right and as such are liable for the cost of services provided. Yet, in many cases, it is not the carer who actually needs the service; it is the person being cared for who needs it because of their illness or disability.Legislation
Strategy for Carers in Scotland 1999 This was a package of measures put in place by the Scottish Executive (became The Scottish Government in 2007) after devolution in 1999. The aim was to commit resources in order to improve service provision for carers. The Strategy comprised three elements: information, support and care for carers. Central to the Strategy was a number of assumptions including a carer's right to choose to care, to be adequately prepared to do so, to receive relevant help at an appropriate stage, and to be enabled to care without it adversely affecting their health or inclusion in society. An important aspect of the Strategy was its emphasis on the provision of services for carers in their own right. This issue built on the provisions of the 1995 Carers (Services and Recognition) Act, which accorded carers the right to an assessment of their needs only if the person they were caring for was being assessed. This measure however, limited carers entitlement to services, undervalued their role and their needs. Community Care and Health Scotland Act 2002 This legislation introduced new rights for carers in Scotland. The Act made provision for the right to a carer's assessment which was independent of the person being cared for. It also placed a duty on local authorities and the NHS to inform carers of their rights. Local authorities are also required to recognise the care being provided by a carer and to take into account the views of a carer when deciding what services to offer to the person being cared for. Underpinning this legislation is the principle that informal unpaid family carers are to be treated as 'key partners' in providing care. The other important policy introduced by this legislation which impacts upon carers is that of Free Personal and Nursing Care for Older People. This policy is unique to Scotland. The definition of personal care contained within the Act does not include 'board and lodging' or 'hotel' costs. The definition is mainly based on the one used by the Royal Commission on Long Term Care (1999) except that it takes account of the needs arising from cognitive impairment and behavioural problems as well as physical frailty. Thus the definition of is different from that used by social services in England. The definition is important because it is used as a basis for community care assessments and describes the range of tasks that might be undertaken by home carers employed by social work departments. It is also an accurate reflection of the activities undertaken by informal, unpaid family carers. This policy has been found to be very effective in supporting carers to continue providing care for longer and the researchers found that the volume of care being provided at home had actually increased in recent years (Bell & Bowes 2006)United Kingdom
According toHistory and legislation
Since the 1950s, UK carers have become increasingly well organized in seeking recognition, improved social care services andCarers (Recognition and Services) Act 1995
The Carers (Recognition and Services) Act 1995 was the first piece of UK legislation which formally recognised the role of unpaid carers and provides for the assessment of the ability of carers to provide care.Carers and Disabled Children Act 2000
This Act, which does not cover Scotland, makes provision about the assessment of carers' needs; to provide for services to help carers; to provide for the making of payments to carers and disabled children aged 16 or 17 in lieu of the provision of services to them and for connected purposes.Carers (Equal Opportunities) Act 2004
This came into force in England on April 1, 2005, and in Wales on April 18, 2005. The Act gives carers new rights to information – Section 1 of the Act places a duty on local authorities to inform Carers of their right to a Carers Assessment. Ensures that work, lifelong learning and leisure are considered when a carer is assessed – Section 2 means that when a Carer's Assessment is being completed it must take into account whether the carer works or wishes to work, any courses the carer is taking or wishes to take, and any other leisure activities the carer undertakes or wishes to undertake. Gives local authorities new powers to gain the help of housing, health, education and other local authorities in providing support to carers – Section 3 states that if the local authority requests another authority to plan services, that authority must give that request due consideration. Government legislation affecting the care of children with disabilities includes: * Special Educational Needs and Disability Act 2001 * TheWork and Families Act 2006
The Work and Families Act 2006, which came into force in England in October 2006, makes provision for improved maternity and adoption leave for women. It also extends the right to request flexible working for Carers.Care Act 2014
The Care Act 2014, which received Royal Assent on the 14th of May 2014, and will be ready for implementation in April 2015, strengthens the rights and recognition of carers in the social care system; including, for the first time, giving carers a clear right to receive services. These are by far the strongest rights for carers yet. Part 1 of the new Act consolidates and modernises the framework of social care law. The Care Act brings those funding their own care into the care system with obligations on local authorities relating to information and advice, universal services, assessments and market shaping among others all applying to self-funders. It also sets out a new model of paying for care, putting in place a cap on the care costs which an individual is liable for.Carer’s Leave Act 2022
The Carer’s Leave Bill was introduced into the House of Commons in September 2022 by Wendy Chamberlain MP. It was supported by the government and passed on 21 October 2022. It gives a new right for UK employees with caring responsibilities to have up to one week of unpaid Carer’s Leave each year. About 2.4 million employees are estimated to be eligible.United States
The National Family Caregivers Association was founded in 1993. According to the United States National Family Caregivers Association, "more than 50 million people provide care for a chronically ill, disabled or aged family member or friend during any given year." The vast majority of these are unpaid caregivers.See also
*References
;GeneralFurther reading
* Arnold, Roxane and Chandler, Olive. National Council for the Single Woman and Her Dependants. Feminine Singular: Triumphs and Tribulations of the Single Woman: An Anthology. London: Femina Books, 1974. * Bell, D and Bowes, A (Financial Care Models in Scotland and the UK, Joseph Rowntree Foundation, York) * Cavaye, J. (2006) Hidden Carers, Dunedin Press, Edinburgh * Cook, Tim. The History of the Carers' Movement. Carers UK, 2007. * Parker, G. (1990) With This Body: Caring and Disability in Marriage, Buckingham, Open University Press. * Scottish Executive (2006) The Future of Unpaid Care in Scotland, Edinburgh, Scottish Executive.External links
;Australia