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Pidgeon Pagonis (born 1986) is an American
intersex Intersex people are individuals born with any of several sex characteristics including chromosome patterns, gonads, or genitals that, according to the Office of the United Nations High Commissioner for Human Rights, "do not fit typical b ...
activist, writer, artist, and consultant. They are an advocate for
intersex human rights Intersex people are born with sex characteristics, such as chromosomes, gonads, or genitals, that, according to the UN Office of the High Commissioner for Human Rights, "do not fit typical binary notions of male or female bodies." Intersex ...
and against nonconsensual
intersex medical interventions Intersex medical interventions, also known as intersex genital mutilations (IGM), are surgical, hormonal and other medical interventions performed to modify atypical or ambiguous genitalia and other sex characteristics, primarily for the purposes ...
.


Early life and education

Pagonis was born in 1986 in
Chicago, Illinois (''City in a Garden''); I Will , image_map = , map_caption = Interactive Map of Chicago , coordinates = , coordinates_footnotes = , subdivision_type = Country , subdivision_name ...
, and has Mexican and Greek ancestry. As a child, Pagonis, a queer and
non-binary Non-binary and genderqueer are umbrella terms for gender identities that are not solely male or femaleidentities that are outside the gender binary. Non-binary identities fall under the transgender umbrella, since non-binary people typica ...
person who uses ''they/them'' pronouns, was diagnosed with
androgen insensitivity syndrome Androgen insensitivity syndrome (AIS) is a difference in sex development involving hormonal resistance due to androgen receptor dysfunction. It affects 1 in 20,000 to 64,000 XY ( karyotypically male) births. The condition results in the partial o ...
(AIS). They were not told of this intersex variation, were
assigned female at birth Sex assignment (sometimes known as gender assignment) is the discernment of an infant's sex at or before birth. A relative, midwife, nurse or physician inspects the external genitalia when the baby is delivered and, in more than 99.95% of bi ...
, told that they had
ovarian cancer Ovarian cancer is a cancerous tumor of an ovary. It may originate from the ovary itself or more commonly from communicating nearby structures such as fallopian tubes or the inner lining of the abdomen. The ovary is made up of three different cel ...
(when they in fact had internal
testes A testicle or testis (plural testes) is the male reproductive gland or gonad in all bilaterians, including humans. It is homologous to the female ovary. The functions of the testes are to produce both sperm and androgens, primarily testost ...
and no ovaries), and subjected to a series of surgeries to alter their genitalia. They learned about intersex traits during their freshman year in college, while attending a lecture at
DePaul University DePaul University is a private, Catholic research university in Chicago, Illinois. Founded by the Vincentians in 1898, the university takes its name from the 17th-century French priest Saint Vincent de Paul. In 1998, it became the largest ...
. They subsequently accessed their own medical records, and learned the truth about their variation. In 2020, they learned that their AIS diagnosis was incorrect and that they have another intersex variation known as NR-5A1, as their low levels of
estrogen Estrogen or oestrogen is a category of sex hormone responsible for the development and regulation of the female reproductive system and secondary sex characteristics. There are three major endogenous estrogens that have estrogenic hormonal ac ...
and
osteopenia Osteopenia, known as "low bone mass" or "low bone density", is a condition in which bone mineral density is low. Because their bones are weaker, people with osteopenia may have a higher risk of fractures, and some people may go on to develop osteo ...
might have indicated. Pagonis graduated from DePaul with bachelor's and master's degrees in women and
gender studies Gender studies is an interdisciplinary academic field devoted to analysing gender identity and gendered representation. Gender studies originated in the field of women's studies, concerning women, feminism, gender, and politics. The field no ...
.


Activism

Pagonis joined the advocacy organization
interACT Advocates for Informed Choice, dba interACT or interACT Advocates for Intersex Youth, is a 501(c)(3) nonprofit organization using innovative strategies to advocate for the legal and human rights of children with intersex traits. The organizati ...
a few years after discovering they were intersex. They became the leadership coordinator of the youth program at interACT. In 2013, Pagonis testified with Mauro Cabral, Natasha Jiménez and Paula Sandrine Machado before the
Inter-American Commission on Human Rights The Inter-American Commission on Human Rights (the IACHR or, in the three other official languages Spanish, French, and Portuguese CIDH, ''Comisión Interamericana de los Derechos Humanos'', ''Commission Interaméricaine des Droits de l'Homme'', ...
about the medical interventions they were subjected to as an intersex child. They were also featured in the 2012 documentary '' Intersexion''. In 2014, Pagonis created a documentary of their own, ''The Son They Never Had: Growing Up Intersex'', which they tour around the country, advocating against nonconsensual "corrective surgeries". This work was published in a
bioethics Bioethics is both a field of study and professional practice, interested in ethical issues related to health (primarily focused on the human, but also increasingly includes animal ethics), including those emerging from advances in biology, me ...
journal, '' Narrative Inquiry in Bioethics''. ''The Son They Never Had'' was also shown at the
Leeds Leeds () is a city and the administrative centre of the City of Leeds district in West Yorkshire, England. It is built around the River Aire and is in the eastern foothills of the Pennines. It is also the third-largest settlement (by popula ...
Queer Film Festival in the UK in March 2017. In 2015, Pagonis created the hashtag campaign #intersexstories for Intersex Awareness Day. The campaign attracted a huge following, with many intersex people sharing their stories. Pagonis also appeared in a
BuzzFeed BuzzFeed, Inc. is an American Internet media, news and entertainment company with a focus on digital media. Based in New York City, BuzzFeed was founded in 2006 by Jonah Peretti and John S. Johnson III to focus on tracking viral content. K ...
video about intersex bodies, identities and experiences. Pagonis is a writer for ''Everyday Feminism'', where they have addressed subjects including anti-black racism in the intersex community, interviewing Sean Saifa Wall and Lynnell Stephani Long, and debate over the inclusion of intersex people in the LGBTQA acronym. Pagonis appeared in a 2016 episode of the television series '' Transparent''. Pagonis’ supervisor and the coordinator for interACT, Kimberly Zeiselman, nominated them for the role. They lobbied for the part when meeting show creator Joey Soloway at a White House awards ceremony. Pagonis was featured in season 3, episode 1 of Transparent and made a cameo as the intersex character of Baxter to increase the representation of intersex people. The role of Baxter involves them working as a volunteer at the Los Angeles LGBT Center hotline along with Maura. In the episode “Elizah,” Baxter is introduced and mentions both the phrase “ambiguous genitalia” as well as referencing the Oprah episode on intersexuality. Pagonis cites the reason for participating in Transparent as creating “a positive instance of representation” for intersex people, increasing the “notoriety” of the intersex movement. The episode was acclaimed and had a positive impact on the visibility of the intersex community, with season 3 of Transparent being considered possibly the most ambitious season by critics. Pagonis considers this role to be a way of advocating for human rights. Pagonis appeared on the cover of the January 2017 ''
National Geographic ''National Geographic'' (formerly the ''National Geographic Magazine'', sometimes branded as NAT GEO) is a popular American monthly magazine published by National Geographic Partners. Known for its photojournalism, it is one of the most widely ...
'' "Gender Revolution" issue. They were one of the intersex activists who wrote in expressing concern that being intersex was defined by the magazine as a
disorder Disorder may refer to randomness, non-order, or no intelligible pattern. Disorder may also refer to: Healthcare * Disorder (medicine), a functional abnormality or disturbance * Mental disorder or psychological disorder, a psychological pattern a ...
. ''National Geographic'' responded to reader pressure by updating the definition in the online issue. In June 2017, Pagonis appeared in a video for ''
Teen Vogue ''Teen Vogue'' is an American online publication, formerly in print, launched in January 2003, as a sister publication to ''Vogue'', targeted at teenagers. Like ''Vogue'', it included stories about fashion and celebrities. Since 2015, following a ...
'' alongside fellow intersex advocates Emily Quinn and Hanne Gaby Odiele, explaining what it means to be intersex. Pagonis also co-founded the Chicago-based Intersex Justice Project with activists Sean Saifa Wall and Lynnell Stephani Long. Wall and Pagonis organized protests and demonstrations outside of
Lurie Children's Hospital Ann & Robert H. Lurie Children's Hospital of Chicago, formerly Children's Memorial Hospital and commonly known as Lurie Children's, is a nationally ranked pediatric acute care children's hospital located in Chicago, Illinois. The hospital has 3 ...
, where Pagonis was operated on as a child. Intersex Justice Project carried forth the #endintersexsurgery campaign against Lurie for three years. On July 28, 2020, Lurie Children's Hospital issued a formal public apology to intersex patients for past surgeries and ceased performing cosmetic surgeries on infants, becoming the first hospital in the United States to do. In May 2021, Pagonis reported that for the second time the intersex hashtag was removed on TikTok and demanded its return. They couldn't click the tag on one of their own posts and trying to search for intersex pulled up a “null” page. TikTok told ''The'' ''Verge'' that in both of the instances Pagonis noticed, the tag had been removed by mistake and was subsequently restored. But because there was no public statement about the accidental removal, Pagonis and others were left to speculate about whether it was being intentionally censored. After growing up with secrecy, lies, and shame around being intersex, Pagonis sees
TikTok TikTok, known in China as Douyin (), is a short-form video hosting service owned by the Chinese company ByteDance. It hosts user-submitted videos, which can range in duration from 15 seconds to 10 minutes. TikTok is an international version ...
and other platforms as spaces where intersex people “can connect with each other and also advocate for ourselves and each other, and then other people can learn about intersex.” But when the easiest way to discover intersex content on TikTok disappears, that erasure follows the historical mistreatment of intersex people. “My community is erased with a scalpel, and with words and linguistics,” said Pagonis, “but this time they’re literally erasing the word.”


Awards and recognition

Pagonis was one of nine
LGBT ' is an initialism that stands for lesbian, gay, bisexual, and transgender. In use since the 1990s, the initialism, as well as some of its common variants, functions as an umbrella term for sexuality and gender identity. The LGBT term is ...
artists honored as an Obama White House Champion of Change in 2015. They were also one of "30 Under 30" honored by the ''
Windy City Times ''Windy City Times'' is an LGBT newspaper in Chicago that published its first issue on September 26, 1985. History ''Windy City Times'' was founded in 1985 by Jeff McCourt, Bob Bearden, Drew Badanish and Tracy Baim, who started Sentury Publicat ...
'' in 2013.


Selected bibliography

* * * * * *


See also

* Intersex rights in the United States *
Intersex human rights Intersex people are born with sex characteristics, such as chromosomes, gonads, or genitals, that, according to the UN Office of the High Commissioner for Human Rights, "do not fit typical binary notions of male or female bodies." Intersex ...
*
Intersex medical interventions Intersex medical interventions, also known as intersex genital mutilations (IGM), are surgical, hormonal and other medical interventions performed to modify atypical or ambiguous genitalia and other sex characteristics, primarily for the purposes ...


References


External links

* * {{DEFAULTSORT:Pagonis, Pidgeon 1986 births American people of Greek descent American people of Mexican descent DePaul University alumni Intersex non-binary people Intersex rights activists Intersex rights in the United States Intersex writers LGBT Hispanic and Latino American people LGBT people from Illinois LGBT rights activists from the United States Living people Non-binary writers People from Chicago Non-binary artists Non-binary activists