Pidgeon Pagonis (born 1986) is an American
intersex
Intersex people are those born with any of several sex characteristics, including chromosome patterns, gonads, or genitals that, according to the Office of the United Nations High Commissioner for Human Rights, "do not fit typical binar ...
activist, writer, artist, and consultant.
They are an advocate for
intersex human rights
Intersex people are born with sex characteristics, such as chromosomes, gonads, or genitals, that, according to the UN Office of the High Commissioner for Human Rights, "do not fit typical binary notions of male or female bodies."
Intersex pe ...
and against nonconsensual
intersex medical interventions
Intersex medical interventions (IMI), sometimes known as intersex genital mutilations (IGM), are surgery, surgical, hormonal and other medical interventions performed to modify atypical or ambiguous genitalia and other sex characteristics, primar ...
.
Early life and education
Pagonis was born in 1986 in
Chicago, Illinois
Chicago is the List of municipalities in Illinois, most populous city in the U.S. state of Illinois and in the Midwestern United States. With a population of 2,746,388, as of the 2020 United States census, 2020 census, it is the List of Unite ...
,
and has Mexican and Greek ancestry.
As a child, Pagonis, a queer and
non-binary
Non-binary or genderqueer Gender identity, gender identities are those that are outside the male/female gender binary. Non-binary identities often fall under the transgender umbrella since non-binary people typically identify with a gende ...
person who uses
''they/them'' pronouns,
was diagnosed with
androgen insensitivity syndrome
Androgen insensitivity syndrome (AIS) is a condition involving the inability to respond to androgens, typically due to androgen receptor dysfunction.
It affects 1 in 20,000 to 64,000 XY (karyotype, karyotypically male) births. The condition result ...
(AIS).
They were not told of this intersex variation, were
assigned female at birth
Sex assignment (also known as gender assignment) is the discernment of an infant's sex, typically made at birth based on an examination of the baby's external genitalia by a healthcare provider such as a midwife, nurse, or physician. In the ...
, told that they had
ovarian cancer
Ovarian cancer is a cancerous tumor of an ovary. It may originate from the ovary itself or more commonly from communicating nearby structures such as fallopian tubes or the inner lining of the abdomen. The ovary is made up of three different ...
(when they in fact had internal
testes
A testicle or testis ( testes) is the gonad in all male bilaterians, including humans, and is homologous to the ovary in females. Its primary functions are the production of sperm and the secretion of androgens, primarily testosterone.
The ...
and no ovaries), and subjected to a series of cosmetic surgeries to remove sections of their genitalia, which their doctors justified as being necessary to facilitate "sexual relationships with men."
They learned about intersex traits during their freshman year in college, while attending a lecture at
DePaul University
DePaul University is a private university, private Catholic higher education, Catholic research university in Chicago, Illinois, United States. Founded by the Congregation of the Mission, Vincentians in 1898, the university takes its name from ...
. They subsequently accessed their own medical records, and learned the truth about their variation.
In 2020, they learned that their AIS diagnosis was incorrect and that they have another intersex variation known as
NR-5A1, as their low levels of
estrogen
Estrogen (also spelled oestrogen in British English; see spelling differences) is a category of sex hormone responsible for the development and regulation of the female reproductive system and secondary sex characteristics. There are three ...
and
osteopenia
Osteopenia, known as "low bone mass" or "low bone density", is a condition in which bone mineral density is low. Because their bones are weaker, people with osteopenia may have a higher risk of fractures, and some people may go on to develop o ...
might have indicated.
Pagonis graduated from DePaul with bachelor's and master's degrees in women and
gender studies
Gender studies is an interdisciplinary academic field devoted to analysing gender identity and gendered representation. Gender studies originated in the field of women's studies, concerning women, feminism, gender, and politics. The field n ...
.
Activism
Pagonis joined the advocacy organization
interACT
Advocates for Informed Choice, dba interACT or interACT Advocates for Intersex Youth, is a 501(c)(3) nonprofit organization advocating for the legal and human rights of children with intersex traits. The organization was founded in 2006 and fo ...
a few years after discovering they were intersex.
They became the leadership coordinator of the youth program at interACT.
In 2013, Pagonis testified with
Mauro Cabral
Mauro Cabral Grinspan, also known as Mauro Cabral, is an Argentinian intersex and trans activist and researcher. He coordinates the project on intersex depathologization at InterAction for Health and Human Rights. Previously, he served as the Seni ...
,
Natasha Jiménez
Natasha Jiménez is a trans and intersex activist and author who is currently the General Coordinator for MULABI, Latin American Space for Sexualities and Rights, the first host of the Intersex Secretariat for ILGA. She is an advisory board membe ...
and Paula Sandrine Machado before the
Inter-American Commission on Human Rights
The Inter-American Commission on Human Rights (the IACHR or, in the three other official languages Spanish, French, and Portuguese language, Portuguese CIDH, ''Comisión Interamericana de los Derechos Humanos'', ''Commission Interaméricaine des ...
about the medical interventions they were subjected to as an intersex child.
They were also featured in the 2012 documentary ''
Intersexion
''Intersexion'' (2012) is a documentary about intersex people. The film was researched and presented by activist Mani Mitchell, New Zealand's first "out" intersex person. ''.
In 2014, Pagonis created a documentary of their own, ''The Son They Never Had: Growing Up Intersex'', which they tour around the country, advocating against nonconsensual "corrective surgeries".
This work was published in a
bioethics
Bioethics is both a field of study and professional practice, interested in ethical issues related to health (primarily focused on the human, but also increasingly includes animal ethics), including those emerging from advances in biology, me ...
journal, ''
Narrative Inquiry in Bioethics
''Narrative Inquiry in Bioethics'' is a triannual academic journal that was established in 2011 and published by Johns Hopkins University Press on behalf of the Foundation for Narrative Inquiry in Bioethics. The editors-in-chief are James M. DuB ...
''.
''The Son They Never Had'' was also shown at the
Leeds
Leeds is a city in West Yorkshire, England. It is the largest settlement in Yorkshire and the administrative centre of the City of Leeds Metropolitan Borough, which is the second most populous district in the United Kingdom. It is built aro ...
Queer Film Festival in the
UK in March 2017.
In 2015, Pagonis created the
hashtag campaign #intersexstories for
Intersex Awareness Day
Intersex Awareness Day is an internationally observed awareness day each October 26, designed to highlight human rights issues faced by intersex people.
History
The event marks the first public demonstration by intersex people in North America ...
. The campaign attracted a huge following, with many intersex people sharing their stories.
Pagonis also appeared in a
BuzzFeed
BuzzFeed, Inc. is an American Internet mass media, media, news and entertainment company with a focus on digital media. Based in New York City, BuzzFeed was founded in 2006 by Jonah Peretti and John Seward Johnson III, John S. Johnson III to ...
video about intersex bodies, identities and experiences.
Pagonis is a writer for ''Everyday Feminism'', where they have addressed subjects including anti-black racism in the intersex community, interviewing
Sean Saifa Wall and Lynnell Stephani Long,
and debate over the inclusion of intersex people in the
LGBTQA
LGBTQ people are individuals who are lesbian, gay, bisexual, transgender, queer, or questioning. Many variants of the initialism are used; LGBTQIA+ people incorporates intersex, asexual, aromantic, agender, and other individuals. The group is ...
acronym.
Pagonis appeared in a 2016 episode of the television series ''
Transparent''. Pagonis’ supervisor and the coordinator for interACT,
Kimberly Zeiselman, nominated them for the role. They lobbied for the part when meeting show creator
Joey Soloway
Joey Soloway (born Jill Soloway; September 26, 1965) is an American television creator, showrunner, director and writer. Soloway is known for creating, writing, executive producing and directing the Amazon original series '' Transparent'', winnin ...
at a White House awards ceremony. Pagonis was featured in season 3, episode 1 of Transparent and made a cameo as the intersex character of Baxter to increase the representation of intersex people.
The role of Baxter involves them working as a volunteer at the Los Angeles LGBT Center hotline along with Maura. In the episode “Elizah,” Baxter is introduced and mentions both the phrase “ambiguous genitalia” as well as referencing the Oprah episode on intersexuality. Pagonis cites the reason for participating in Transparent as creating “a positive instance of representation” for intersex people, increasing the “notoriety” of the intersex movement.
The episode was acclaimed and had a positive impact on the visibility of the intersex community, with season 3 of Transparent being considered possibly the most ambitious season by critics. Pagonis considers this role to be a way of advocating for human rights.
Pagonis appeared on the cover of the January 2017 ''
National Geographic
''National Geographic'' (formerly ''The National Geographic Magazine'', sometimes branded as ''Nat Geo'') is an American monthly magazine published by National Geographic Partners. The magazine was founded in 1888 as a scholarly journal, nine ...
'' "Gender Revolution" issue. They were one of the intersex activists who wrote in expressing concern that being intersex was defined by the magazine as a
disorder
Disorder may refer to randomness, a lack of intelligible pattern, or:
Healthcare
* Disorder (medicine), a functional abnormality or disturbance
* Mental disorder or psychological disorder, a psychological pattern associated with distress or disab ...
. ''National Geographic'' responded to reader pressure by updating the definition in the online issue.
In June 2017, Pagonis appeared in a video for ''
Teen Vogue
''Teen Vogue'' is an American progressive online publication, formerly in print, launched in January 2003, as a sister publication to '' Vogue'', targeted at teenage girls and young women. Like ''Vogue'', it included stories about fashion and ...
'' alongside fellow intersex advocates Emily Quinn and
Hanne Gaby Odiele
Hanne Gaby Odiele (born 8 October 1988) is a Belgian model.
Early life
Odiele was born on 8 October 1988 in Kortrijk, Belgium. They were born with unspecified variant of androgen insensitivity syndrome.
As a child, Odiele underwent medical ...
, explaining what it means to be intersex.
Pagonis also co-founded the Chicago-based Intersex Justice Project with activists
Sean Saifa Wall and Lynnell Stephani Long. Wall and Pagonis organized protests and demonstrations outside of
Lurie Children's Hospital
Ann & Robert H. Lurie Children's Hospital of Chicago, formerly Children's Memorial Hospital and commonly known as Lurie Children's, is a nationally ranked pediatric acute care children's hospital located in Chicago, Illinois. The hospital has ...
, where Pagonis was operated on as a child. Intersex Justice Project carried forth the #endintersexsurgery campaign against Lurie for three years. On July 28, 2020, Lurie Children's Hospital issued a formal public apology to intersex patients for past surgeries and ceased performing cosmetic surgeries on infants, becoming the first hospital in the United States to do.
In May 2021, Pagonis reported that for the second time the
intersex hashtag was removed on TikTok and demanded its return.
A poster could not click the tag on their own post and trying to search for intersex pulled up a “null” page.
TikTok told
''The'' ''Verge'' that in both of the instances Pagonis noticed, the tag had been removed by mistake and was subsequently restored.
But because there was no public statement about the accidental removal, Pagonis and others were left to speculate about whether it was being intentionally censored.
After growing up with secrecy, lies, and shame around being intersex, Pagonis sees
TikTok
TikTok, known in mainland China and Hong Kong as Douyin (), is a social media and Short-form content, short-form online video platform owned by Chinese Internet company ByteDance. It hosts user-submitted videos, which may range in duration f ...
and other platforms as spaces where intersex people “can connect with each other and also advocate for ourselves and each other, and then other people can learn about intersex.”
But when the easiest way to discover intersex content on TikTok disappears, that erasure follows the historical mistreatment of intersex people.
“My community is
erased with a scalpel, and with words and linguistics,” said Pagonis, “but this time they’re literally erasing the word.”
Awards and recognition
Pagonis was one of nine
LGBT
LGBTQ people are individuals who are lesbian, gay, bisexual, transgender, queer, or questioning. Many variants of the initialism are used; LGBTQIA+ people incorporates intersex, asexual, aromantic, agender, and other individuals. The gro ...
artists honored as an
Obama White House Champion of Change in 2015.
They were also one of "30 Under 30" honored by the ''
Windy City Times
''Windy City Times'' is an LGBT newspaper in Chicago that published its first issue on September 26, 1985.
History
''Windy City Times'' was founded in 1985 by Jeff McCourt, Bob Bearden, Drew Badanish and Tracy Baim, who started Sentury Public ...
'' in 2013.
Selected bibliography
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*
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*
See also
*
Intersex rights in the United States
Intersex people in the United States have some of the same rights as other people, but with significant gaps, particularly in protection from non-consensual cosmetic medical interventions and violence, and protection from discrimination. Actions ...
*
Intersex human rights
Intersex people are born with sex characteristics, such as chromosomes, gonads, or genitals, that, according to the UN Office of the High Commissioner for Human Rights, "do not fit typical binary notions of male or female bodies."
Intersex pe ...
*
Intersex medical interventions
Intersex medical interventions (IMI), sometimes known as intersex genital mutilations (IGM), are surgery, surgical, hormonal and other medical interventions performed to modify atypical or ambiguous genitalia and other sex characteristics, primar ...
References
External links
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{{DEFAULTSORT:Pagonis, Pidgeon
1986 births
American people of Greek descent
American people of Mexican descent
DePaul University alumni
Intersex non-binary people
Intersex rights activists
Intersex rights in the United States
American intersex writers
LGBTQ Hispanic and Latino American people
LGBTQ people from Illinois
American LGBTQ rights activists
Living people
American non-binary writers
People from Chicago
American non-binary artists
Non-binary activists
Artists from Chicago
Writers from Chicago
21st-century American writers
21st-century American artists
21st-century American LGBTQ people