Global Genes is a global non-profit
advocacy organization
Advocacy is an activity by an individual or group that aims to influence decisions within political, economic, and social institutions. Advocacy includes activities and publications to influence public policy, laws and budgets by using fac ...
for individuals and families fighting rare and
genetic diseases
A genetic disorder is a health problem caused by one or more abnormalities in the genome. It can be caused by a mutation in a single gene (monogenic) or multiple genes (polygenic) or by a chromosome abnormality. Although polygenic disorders are ...
. The organization is associated with a blue denim "Genes Ribbon" that is intended to raise awareness of patients affected by rare and genetic diseases. Global Genes uses a simple concept of "jeans and genes" to promote awareness of
rare disease
A rare disease is any disease that affects a small percentage of the population. In some parts of the world, the term orphan disease describes a rare disease whose rarity results in little or no funding or research for treatments, without financi ...
; its slogan is "Allies in Rare Disease".
History
The organization was founded in 2009, and is associated with several rare disease
awareness campaigns
In philosophy and psychology, awareness is the perception or knowledge of something. The concept is often synonymous with consciousness. However, one can be aware of something without being explicitly conscious of it, such as in the case of blin ...
a numerous fundraising efforts.
The organization has gained recognition for campaigns and annual involvement in promoting
Rare Disease Day
Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. The date is chosen becaus ...
.
References
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External links
Global Genes
Medical and health organizations based in California
Genetic diseases and disorders
Rare disease organizations